The Calgary Movement Disorders Advanced Care Pilot Program

The Calgary Movement Disorders Advanced Care Pilot Program

The goal of this clinical trial is to analyse the effect of palliative care interventions on quality of life, patient satisfaction, carepartner burden and health care utilization patterns in patients living with parkisonism and their carepartners.

Participants will:

• Receive multidisciplinary palliative care.
• Answer questions related to the quality of life, patient satisfaction, carepartner burden and health care utilization patterns.

Inclusion Criteria:

• Participants who have a PD diagnosis or another PDRD diagnosis (multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, or Lewy body dementia)
• Participants who have moderate to high PC needs based on the Palliative Care Needs Assessment Tool (PC-NAT)
• Participants who are between 20 and 100 years old

Exclusion Criteria:

• Immediate and urgent palliative care needs. These patients will be offered appropriate services immediately
• Participants who have other illnesses that could require PC e.g. metastatic cancer
• Participants already receiving PC and/or hospice
• Patients with a diagnosis of severe cognitive impairment (Montreal Cognitive Assessment <10). These patients will be offered appropriate services. Care partners can participate.