Not provided
Not provided
| ID | Type | Description | Link |
|---|---|---|---|
| R44AG065088 | U.S. NIH Grant/Contract | View source |
Not provided
Not provided
Not provided
Study withdrawn and being modified under another protocol
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| National Institute on Aging (NIA) | NIH |
| Minnesota HealthSolutions | INDUSTRY |
Not provided
Not provided
Not provided
Not provided
This research is being done to develop a unique matching process for caregivers of persons living with dementia, such as Alzheimer's disease, Lewy body dementia, frontotemporal degeneration, or other dementia syndromes. Dementia caregivers often assume greater caregiving burden than do non-dementia caregivers, and the caregiving duration tends to be longer. Many caregivers do not have the adequate support they need. Peer-to-peer support has been shown to improve quality of life, increase use of services, improve caregiver health, and reduce hospitalizations in the person they are caring for. This study will assess a technology platform and matching process for the purpose of peer-to-peer emotional support aimed at improving overall wellbeing in dementia care partners/caregivers.
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Algorithmically Matched | Experimental | Individuals that identify as a current and/or former Care Partner for a person with dementia will be matched to other care partners using an algorithm based on personal preferences. |
|
| Randomly Matched | Active Comparator | Individuals that identify as a current and/or former Care Partner for a person with dementia will be randomly matched to other care partners. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Algorithm | Behavioral | Current and/or former Care Partners of persons with dementia will be matched using an algorithm to other Care Partners who might provide emotional support. |
| Measure | Description | Time Frame |
|---|---|---|
| Match Satisfaction Questionnaire | All participants will complete a match satisfaction questionnaire to assess whether being matched to a supportive Care Partner via an algorithm based on personal preferences results in greater match satisfaction than being matched at random. | 12 months |
| Change over time from Baseline Resilience to 12 months | All participants will complete questions surveying resilience to determine whether Care Partners randomized to algorithmic matching based on personal preferences will report a greater sense of resiliency after being matched than Care Partners who are randomly matched. | Baseline,12 months |
| Change over time from Baseline Quality of Life to 12 months | All participants will complete questions surveying quality of life to determine whether Care Partners randomized to algorithmic matching based on personal preferences will report improved quality of life after being matched than Care Partners who are randomly matched. | Baseline, 12 months |
| Scale of Perceived Social Support | All participants will complete survey questions regarding perceived level of social support to assess impact on match satisfaction. | 12 months |
| Measure | Description | Time Frame |
|---|---|---|
| Survey of Executive Skills | All participants will complete questions regarding executive functioning (e.g., flexibility, problem-solving) to determine whether the level of these skills relates to ease or difficulty in finding a satisfactory supportive Care Partner match. | 12 months |
Not provided
Individuals in a current or former caregiving role for a family member living with dementia will be recruited for this study. There will be no sex or gender restrictions, or exclusion based on race or ethnicity. Participants must be at least 18 years of age.
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Affiliation | Role |
|---|---|---|
| Julie Fields, PhD, LP | Mayo Clinic | Principal Investigator |
| Kevin Kramer, PhD | Minnesota HealthSolutions, Inc. | Principal Investigator |
Not provided
Not provided
| Label | URL |
|---|---|
| Mayo Clinic Clinical Trials | View source |
Not provided
Participants will be randomly assigned to two different arms of the study: one where the algorithm matches individuals and one where matches are randomly assigned.
Not provided
Not provided
Not provided
| Random Match | Behavioral | Current and/or former Care Partners of persons with dementia will be randomly matched to other Care Partners who might provide emotional support. |
|
| ID | Term |
|---|---|
| D000084802 | Caregiver Burden |
| D003704 | Dementia |
| D000544 | Alzheimer Disease |
| D020961 | Lewy Body Disease |
| D057180 | Frontotemporal Dementia |
| ID | Term |
|---|---|
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
| D001523 | Mental Disorders |
| D024801 | Tauopathies |
| D019636 | Neurodegenerative Diseases |
| D020734 | Parkinsonian Disorders |
| D001480 | Basal Ganglia Diseases |
| D009069 | Movement Disorders |
| D000080874 | Synucleinopathies |
| D057174 | Frontotemporal Lobar Degeneration |
| D057177 | TDP-43 Proteinopathies |
| D057165 | Proteostasis Deficiencies |
| D008659 | Metabolic Diseases |
| D009750 | Nutritional and Metabolic Diseases |
Not provided
Not provided
| ID | Term |
|---|---|
| D000465 | Algorithms |
| ID | Term |
|---|---|
| D055641 | Mathematical Concepts |
Not provided
Not provided