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| Name | Class |
|---|---|
| Muscular Dystrophy Canada | OTHER |
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This exploratory study used a pre-post test design. The supervised rehabilitation program was performed three times a week for 8 weeks (two sessions at a rehabilitation gym and one pool session). Outcome measures included Ottawa sitting scale, 30-Second Chair Stand test, Berg Balance Scale, 10-Meter Walk Test, 6-minute Walk Test, modified Activities-specific Balance Confidence Scale and SARA scale. 10 participants will complete the training program. They will be evaluated at baseline, at week 4 (miway) and after the program.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Training program | Experimental | 8-week rehabilitation program aimed at increasing trunk and lower limb motor control on balance and walking abilities, and accomplishment of activities of daily living. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Training program | Other | 8-week rehabilitation program aimed at increasing trunk and lower limb motor control on balance and walking abilities, and accomplishment of activities of daily living. |
| Measure | Description | Time Frame |
|---|---|---|
| Change in the Scale for the assessement and rating of ataxia (SARA) | Measured with the Scale for the assessement and rating of ataxia (SARA), score range 0-40, higher score indicates higer ataxia severity | Baseline, week 4, week 8 |
| Measure | Description | Time Frame |
|---|---|---|
| Change in walking speed | Change in the walking speed, measured with the time to walk 10 meters at comfortable and maximum speed | Baseline, week 4, week 8 |
| Change in the number of sit-to-stand performed in 30 seconds |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Cynthia Gagnon, PhD | Sherbrooke University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Groupe de recherche interdisciplinaire sur les maladies neuromusculaires | Saguenay | Quebec | G7X 7X2 | Canada |
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| ID | Term |
|---|---|
| C536787 | Spastic ataxia Charlevoix-Saguenay type |
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Number of complete sit-to-stand performed in 30 seconds without the help of arms
| Baseline, week 4, week 8 |
| Change in the balance confidence | Measured with the modified Activities-specific Balance Confidence (ABC) Scale, score range 0-100, 0 indicates no confidence and 100 is full confidence. | Baseline, week 4, week 8 |
| Change in balance | Measured with the Berg Balance Scale, score range 0-56, a higher score indicates better balance. | Baseline, week 4, week 8 |
| Change in sitting balance | Measured with the Ottawa sitting scale, score range 0-40, a higher score indicates a better outcome. | Baseline, week 4, week 8 |
| Change in the level of independence to perform daily living activities | Measured with the Barthel Index, score range 0-100, a higher score indicates a higher level of independence. | Baseline, week 4, week 8 |