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| ID | Type | Description | Link |
|---|---|---|---|
| 2021-A02637-34 | Registry Identifier | IDRCB |
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The primary objective of the study is to analysis the personal determination factors (age, sex, stage of injury, pain, urinary continence and durations of spinal cord injury) and environmental determination factors (need for medical devices, nurse care and adaptation of accommodations) which affect the quality of life and their occupations on patients with medullar injury.
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| Measure | Description | Time Frame |
|---|---|---|
| Quality of life by QUALIVEEN-30 | The questionnaire QUALIVEEN-30 will be used to evaluate the quality of life. It's a reliable tool specially for patients with medullar injury and recommended by the European Association of Urology as Guideline since 2008. The french version is validated. | at baseline |
| Model of human occupation | Questionnaire MCREO (french version) will be used to evaluate patients in the occupational aspect. | at baseline |
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Inclusion Criteria:
Adult patients with spinal cord injury;
Live at home or in long-term care facility definitively;
Have one of the following urination modes:
Exclusion Criteria:
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Adult patients with medular injury who have their follow-up care in the neuro-urology unit in raymond poincaré hospital, live at home or in long-term care facility definitively.
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| Name | Affiliation | Role |
|---|---|---|
| Alexia EVEN, MD | Neuro-Urology Unit, Physical Medicine and Rehabilitation Department, Raymond Poincaré Hospital, APHP | Principal Investigator |
| Aurélie -Anna DUBOIS | Neuro-Urology Unit, Physical Medicine and Rehabilitation Department, Raymond Poincaré Hospital, APHP | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Neuro-Urology Unit, Physical Medicine and Rehabilitation Department, Raymond Poincaré Hospital, APHP | Garches | 92380 | France |
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| ID | Term |
|---|---|
| D014555 | Urination Disorders |
| ID | Term |
|---|---|
| D014570 | Urologic Diseases |
| D052776 | Female Urogenital Diseases |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
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| D052801 | Male Urogenital Diseases |