Genetic Testing Decision Aid

Randomized, Controlled Trial of an Electronic Decision Aid for Genetic Testing in Inherited Cancer Syndromes

This is a randomized trial to evaluate the effectiveness of an electronic decision aid tool versus a traditional genetic counselor session for multi-gene panel testing for people with ovarian or pancreatic cancer

The research study procedures include: screening for eligibility and study questionnaires that would be performed in conjunction with either the genetic counselor visit or use of the electronic decision aid. The study questionnaires include:

• Knowledge Survey
• Shared Decision Making Process Survey
• Decisional Conflict Scale

The research study will last up to 2 weeks. It is expected that about 350 people will take part in this research study.

The National Cancer Institute (NCI) is supporting this research study by providing funding for the research

Inclusion Criteria:

• 18 years or older
• Being seen in clinic at Massachusetts General Hospital or Boston Medical Center
• Diagnosed with malignant epithelial ovarian carcinoma or malignant pancreatic adenocarcinoma.

Exclusion Criteria :

• Unable or unwilling to provide informed consent, undergo randomization, or complete the surveys associated with the study
• Previous germline genetic testing
• History of hereditary pancreatitis
• Members of the following vulnerable populations: adults unable to consent, individuals who are not yet adults