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Peer mentoring is an approach used to support patients through their experience. In the End Stage Kidney Disease community many patients find out about their kidney failure without warning. This study is designed to test the feasibility of a structured peer support program, specifically, patient uptake, engagement and patient and staff perspectives.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Mentee | Experimental | Participants will be approached by a mentor, exchange experiences and invite the prospective mentee to the program. Those interested to continue will undergo matching based on their desired criteria. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Mentoring | Behavioral | At least one meeting between the mentor and mentee will occur to share experiences and see if the mentee would like to continue meeting with a mentor |
|
| Measure | Description | Time Frame |
|---|---|---|
| Mentor | Number of patients registering to become mentors, percent of those registered completing mentor training and percent of trained mentors who meet at least one mentee. | 6 - 12 months |
| Mentee | Number and proportion of patients starting dialysis, or prevalent dialysis patients identified by the clinical team to need peer support, who receive an introductory peer mentor visit. Number and % of mentees who indicate interest to continue with more peer mentoring visits. | 1 month |
| Measure | Description | Time Frame |
|---|---|---|
| Mentor Perspectives | Evaluation of recruitment, training and program. Data collection will be through the Mentor Recruitment and Training Evaluation form and through focus group discussions | 6-12month |
| Mentee Perspectives |
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Mentor Patient Participants Inclusion criteria:
Mentor Patient Participants Exclusion criteria:
Mentee Patient Participants Inclusion criteria:
OR
Mentee Patient Participants Exclusion criteria:
Clinical and administrative staff supporting the program inclusion criteria
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| Name | Affiliation | Role |
|---|---|---|
| Wael Hussein, MD | Satellite Healthcare | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Satellite Healthcare Mountain View | Mountain View | California | 94040 | United States | ||
| WellBound Mountain View |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 29722062 | Background | Bennett PN, St Clair Russell J, Atwal J, Brown L, Schiller B. Patient-to-patient peer mentor support in dialysis: Improving the patient experience. Semin Dial. 2018 Sep;31(5):455-461. doi: 10.1111/sdi.12703. Epub 2018 May 2. | |
| Background | Collins, K. (2016). NKF Peers Mentoring Program. National Kidney Foundation Journal of Nephrology Social Work, 40(2), 25-33. | ||
| Background | Fida'Husain, H. K., & Johan, A. (2020). Effects of Peer Support Program on Self-Management in Patients with End-Stage Renal Disease Undergoing Hemodialysis. | ||
| 35373037 |
| Label | URL |
|---|---|
| Centers for Medicare and Medicaid Services (CMS). (2021). Partnership for patients. | View source |
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| ID | Term |
|---|---|
| D007676 | Kidney Failure, Chronic |
| ID | Term |
|---|---|
| D051436 | Renal Insufficiency, Chronic |
| D051437 | Renal Insufficiency |
| D007674 | Kidney Diseases |
| D014570 | Urologic Diseases |
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We aim to conduct the study over 6 to 12 months to obtain enough experience to enable feasibility evaluation.
Mentor pool sample size: We anticipate having about 10 patients in the mentors' pool during the study period.
Mentee sample size: We anticipate approaching between 20 to 30 dialysis patients over the study period.
Supporting team: All members of the supporting staff will be invited to participate.
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Peer Mentorship Program Evaluation - Mentee form to be completed by the mentee to collect data on the mentees perspective of the program
| 1-4 weeks |
| Support Staff Perspectives | Peer Mentorship Program Evaluation - Staff to be completed by the center staff to collect data on their perspective of the program | 3,6,9 and 12 months |
| Mentor - Mentee Matching | Preferences about matching (n and % for age range, gender, race, language, social conditions, specific dialysis experiences [e.g. Peritoneal Dialysis / Home HemoDialysis / transplant], and others). | 1 month |
| Mountain View |
| California |
| 94040 |
| United States |
| Background |
| Flythe JE, Narendra JH, Yule C, Manivannan S, Murphy S, Lee SD, Strigo TS, Peskoe S, Pendergast JF, Boulware LE, Green JA. Targeting Patient and Health System Barriers To Improve Rates of Hemodialysis Initiation with an Arteriovenous Access. Kidney360. 2021 Feb 26;2(4):708-720. doi: 10.34067/KID.0007812020. eCollection 2021 Apr 29. |
| 34717865 | Background | Hussein WF, Bennett PN, Schiller B. Innovations to Increase Home Hemodialysis Utilization: The Transitional Care Unit. Adv Chronic Kidney Dis. 2021 Mar;28(2):178-183. doi: 10.1053/j.ackd.2021.02.009. |
| 26594739 | Background | Orsmond GI, Cohn ES. The Distinctive Features of a Feasibility Study: Objectives and Guiding Questions. OTJR (Thorofare N J). 2015 Jul;35(3):169-77. doi: 10.1177/1539449215578649. |
| 29281772 | Background | St Clair Russell J, Southerland S, Huff ED, Thomson M, Meyer KB, Lynch JR. A Peer-to-Peer Mentoring Program for In-Center Hemodialysis: A Patient-Centered Quality Improvement Program. Nephrol Nurs J. 2017 Nov-Dec;44(6):481-496. |
| ESRD National Coordinating Center. (2021). ESRD Networks Peer Mentor Program. | View source |
| Lessons Learned: Implementation of a Peer-to-Peer Mentor Program in Individuals Requiring Hemodialysis. | View source |
| D052776 |
| Female Urogenital Diseases |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
| D052801 | Male Urogenital Diseases |
| D002908 | Chronic Disease |
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |