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Study halted prematurely, prior to enrollment of first participant
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This proposal seeks to improve the investigators' post-stroke TOC process through developing an innovative, patient informed and guided solution aimed at addressing the investigators' deep south African American population within the UAB system. The investigators will engage participants in both urban and rural Alabama through informational interviews and work to find common themes to address so that future interventions are useful to their unique needs and desires. This goes beyond simply identifying barriers and endeavors to discovering solutions.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Stroke Survivors <1 year | Group A will include participants that are less than 1 year out from their most recent stroke. |
| |
| Stroke Survivors >1 year | Group B will include participants that are greater than 1 year out from their most recent |
| |
| Caregivers | Group C will include participants' identified caregivers. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Informational Interview | Other | Interview topics will fall in the broad categories of assessing medical knowledge and understanding of stroke, knowledge of medical and community resources, understanding and experience of post-stroke rehabilitation barriers faced upon reintegrating back home and ability to continue management of stroke diagnosis and suggestions for improvement. |
| Measure | Description | Time Frame |
|---|---|---|
| Feasibility of recruitment and retention | The investigators will screen 60-100 individuals with the goal of enrolling a total of 20 AA (African American) stroke survivors +/- their identified caregivers. Historically, there has been low recruitment and retention rates for AAs. The investigators plan to over-recruit in order to account for this phenomenon and track our success/failure rates with percent retained vs recruited. | July 1,2022-January 20, 2023 |
| Ability to use Zoom platform | The Zoom platform is becoming a more popular avenue to conduct qualitative interviews for research purposes among researchers and participants. The investigators will evaluate if this reported phenomenon is reproducible within this particular research cohort. Success will measured by a 50% or greater completion of interview and the ability to successfully connect to the zoom platform either via smart device or telephone dial in. The investigators will also document any technical difficulties that are encountered from either the interviewer's standpoint or the participant's standpoint. | July 1,2022-January 20, 2023 |
| Validity of questions asked to arrive at the themes that will appropriately inform the basis of this proposal | We will extract data from transcriptions of participants' Zoom interviews and perform thematic analysis | February 2023-May 2023 |
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Inclusion Criteria:
Exclusion Criteria:
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We will screen 60-100 individuals with the goal of enrolling a total of 20 AA stroke survivors +/- their identified caregivers. Individuals will be recruited from within the UAB Health System from the acute care neurology stroke service and the PI's stroke recovery clinic. Participants will be separated into 3 groups. Group A will include n=10 participants that are less than 1 year out from their most recent stroke. Group B will include n=10 participants that are greater than 1 year out from their most recent stroke. Group C will include the participants' identified caregivers. Having an available caregiver is preferred but is not required. Therefore, a goal of at least 10 caregivers is set.
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| ID | Term |
|---|---|
| D020521 | Stroke |
| D017060 | Patient Satisfaction |
| D000084802 | Caregiver Burden |
| ID | Term |
|---|---|
| D002561 | Cerebrovascular Disorders |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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| ID | Term |
|---|---|
| D017144 | Focus Groups |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| Focus Group | Other | Focus group topics will fall into the same broad categories as the informational interviews, however will be asked from a caregiver's perspective |
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| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
| D000074822 | Treatment Adherence and Compliance |
| D015438 | Health Behavior |
| D001519 | Behavior |
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |