Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| Imperial College London | OTHER |
| Johns Hopkins University | OTHER |
| Stanford University | OTHER |
| University of Sheffield |
Not provided
Not provided
Not provided
Not provided
Not provided
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center.
Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.
The data provided by PVRI-GoDeep will support academia to perform scientific projects in the field of PH. Pharmaceutical / commercial companies will be charged fee for access to PVRI-GoDeep data and / or analysis, thereby creating revenues exclusively devoted to support the PVRI mission and the registries entering their data into PVRI-GoDeep. All requests from academia or commercial companies are to be decided by the PVRI-GoDeep consortium, serving as Use and Access Committee.
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients with Pulmonary Hypertension | Patients with a diagnosis of pulmonary hypertension typically diagnosed via right heart catheterization. | ||
| Control Group | Participating PH centers can optionally provide data about patients with exclusion of pulmonary hypertension |
Not provided
| Measure | Description | Time Frame |
|---|---|---|
| Global analysis of PH patients | Global comparison and analysis of the course of disease of PH patients | From entry into the registry up to 10 years |
Not provided
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Global cohort of patients with pulmonary hypertension (PH)
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Raphael W Majeed | Contact | +49 641 985 42502 | raphael.majeed@innere.med.uni-giessen.de |
Not provided
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University Giessen PH Center | Recruiting | Giessen | Hesse | 35392 | Germany |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38508334 | Derived | Yogeswaran A, Gall H, Funderich M, Wilkins MR, Howard L, Kiely DG, Lawrie A, Hassoun PM, Sirenklo Y, Torbas O, Sweatt AJ, Zamanian RT, Williams PG, Frauendorf M, Arvanitaki A, Giannakoulas G, Saleh K, Sabbour H, Cajigas HR, Frantz R, Al Ghouleh I, Chan SY, Brittain E, Annis JS, Pepe A, Ghio S, Orfanos S, Anthi A, Majeed RW, Wilhelm J, Ghofrani HA, Richter MJ, Grimminger F, Sahay S, Tello K, Seeger W; Pulmonary Vascular Research Institute GoDeep Consortium. Comparison of Contemporary Risk Scores in All Groups of Pulmonary Hypertension: A Pulmonary Vascular Research Institute GoDeep Meta-Registry Analysis. Chest. 2024 Sep;166(3):585-603. doi: 10.1016/j.chest.2024.03.018. Epub 2024 Mar 19. |
Not provided
Not provided
Not provided
| ID | Term |
|---|---|
| D006976 | Hypertension, Pulmonary |
| ID | Term |
|---|---|
| D008171 | Lung Diseases |
| D012140 | Respiratory Tract Diseases |
| D006973 | Hypertension |
| D014652 | Vascular Diseases |
Not provided
Not provided
| OTHER |
| University of Pittsburgh | OTHER |
| University of Pavia | OTHER |
| Hospital de Niños de la Santísima Trinidad | UNKNOWN |
| Academy of Medical Sciences of Ukraine | OTHER |
| The Methodist Hospital Research Institute | OTHER |
| Vanderbilt University Medical Center | OTHER |
| Mayo Clinic | OTHER |
| National and Kapodistrian University of Athens | OTHER |
| Aristotle University Of Thessaloniki | OTHER |
| University Hospital of Targu Mures, Romania | OTHER |
| University Hospital Heidelberg | OTHER |
| Milpark Hospital | UNKNOWN |
| University of Minnesota | OTHER |
| Royal Prince Alfred Hospital, Sydney, Australia | OTHER |
| Fiona Stanley Hospital | OTHER |
| Sunshine Coast University Hospital | UNKNOWN |
| China-Japan Friendship Hospital | OTHER |
| Medical University of Graz | OTHER |
| National Hospital Organization Okayama Medical Center | OTHER |
| Royal Hobart Hospital | OTHER_GOV |
| University Hospital, Zürich | OTHER |
| Universidad Nacional de La Plata | OTHER |
| Gold Coast Hospital and Health Service | OTHER_GOV |
Not provided
Not provided
Not provided
| D002318 |
| Cardiovascular Diseases |