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Neuroendocrine tumors (NET) are rare tumors that require specific diagnosis and treatment. Therefore, this poses a challenge for clinical practice. Diagnosis and treatment can be optimized when physician specialists and other healthcare providers, across various hospitals, join forces to provide patients the best care. Based on this idea, a hospital network called NETwerk was set up. The following hospitals are part of this network: University Hospital Antwerp, VITAZ, AZ Monica, AZ Voorkempen, AZ Klina, Gasthuiszusters Antwerpen, Ziekenhuis Netwerk Antwerpen and AZ Rivierenland. In this NETwerk, patients with a neuroendocrine tumor or patients suspected with a neuroendocrine tumor are discussed with the specialists and treated.The aim of this study is to map the quality of life of NET patients within NETwerk in order to optimize the quality of care. Throughout the diagnosis, the treatment process and the follow-up, the patient will be asked to fill out three questionnaires (QLQ-C30, QLQ-GI.NET21 and a satisfaction survey). These questionnaires will be filled out every six months at home. Patients will be asked to complete these questionnaires over a period of five years.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| NEN patients | Experimental | EORTC QLQ-C30, EORTC QLQ-GI.NET21 and satisfaction survey |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| EORTC QLQ-C30 | Procedure | Quality of life questionnaire that has to be completed every 6 months |
|
| Measure | Description | Time Frame |
|---|---|---|
| Quality of life measurement with QLQ-C30 questionnaire | Quality of life measurement with QLQ-C30 questionnaire | 5 years |
| Quality of life measurement with QLQ-GI.NET21 questionnaire | Quality of life measurement with QLQ-GI.NET21 questionnaire | 5 years |
| Measure | Description | Time Frame |
|---|---|---|
| Quality of care measurement with satisfaction survey | Quality of care measurement with satisfaction survey | 5 years |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Timon U Vandamme | Contact | 03821 | 2111 | timon.vandamme@uza.be |
| Isolde Van der Massen | Contact |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| AZ Klina | Recruiting | Brasschaat | Antwerp | 2930 | Belgium |
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| EORTC QLQ-GI.NET21 | Procedure | Quality of life questionnaire that has to be completed every 6 months |
|
| Satisfaction survey | Procedure | Questionnaire regarding satisfaction of care that has to be completed on Day 1. |
|
| AZ Monica | Not yet recruiting | Deurne | Antwerp | 2100 | Belgium |
|
| Antwerp University Hospital | Recruiting | Edegem | Antwerp | 2650 | Belgium |
|
| AZ Rivierenland | Recruiting | Rumst | Antwerp | 2840 | Belgium |
|
| VITAZ | Recruiting | Sint-Niklaas | East-Flanders | 9100 | Belgium |
|
| ZNA | Recruiting | Antwerp | 2020 | Belgium |
|
| GZA | Recruiting | Antwerp | 2610 | Belgium |
|