Study of Satisfaction of Patients and Care Providers for an Alternate Follow-up With In-hospital Consults and Tele-consult for Patients With Cystic Fibrosis

FollowMuco : Study of Satisfaction of Patients and Care Providers for an Alternate Follow-up With In-hospital Consults and Tele-consult for Patients With Cystic Fibrosis

The pandemic forced us to develop home follow-up for patients with chronical diseases . In the same time, the new era of treatment for cystic fibrosis considerably improves the health of patients with this pathology.

This study aims to assess the satisfaction of patients and care providers for an alternated follow-up between tele-consults and in-hospital consults during one year for patients with cystic fibrosis treated by Kaftrio® since at least one year and stable.

Inclusion Criteria:

• patients with cystic fibrosis
• Patients treated with Kaftrio® since one year
• autonomous patients
• patients without cognitive disorders
• Patients voluntary for this follow up
• patients with two tele-communication tools
• patients with FEV1>50%
• patients with less of 2 antibiotics cure per year

Exclusion Criteria:

• all transplanted patients
• Pregnant patients
• Particular follow up needed in-hospital consult
• Persons deprived of their liberty by a judicial or administrative decision
• Persons subject to psychiatric care
• Persons admitted to a health or social establishment for purposes other than research
• Persons not affiliated to a social security scheme or beneficiaries of a similar scheme