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In this study, we will explore the perspective of family carers of older adults from Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP), more specifically concerning their knowledge about ACP, their experiences with and their points of view on ACP for their family member and their own preferences regarding how to be involved in the process of ACP for their relatives.
Whether or not someone wants to engage in ACP, is often the result of a complex interplay of meanings, events, processes and assumptions constructed by the patient and is best approached by qualitative methods. Semi-structured interviews will be used in order to explore the respondents' knowledge about and experience with ACP, also their views concerning ACP for their relatives and how do they prefer to engage in the process of ACP for their relatives will be explored.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| One to one interviews with family carers of older people from Turkish and Moroccan origin | Other | one to one interviews |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| one to one interviews | Other | one to one interviews to explore the perspective of family carers of older adults of Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP) |
| Measure | Description | Time Frame |
|---|---|---|
| Knowledge of family carers of older adults from Turkish and Moroccan origin about advance care planning | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you ever heard of advance care planning? Does that term mean anything to you? What do you know about communicating wishes in advance to family members or doctor and notice this? | 12 months |
| Measure | Description | Time Frame |
|---|---|---|
| Experiences of family carers of older adults from Turkish and Moroccan origin have with engaging in the process of ACP for their relatives | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you personally already spoken with some of your relatives about their future wishes what matters to him/her regarding his/her healthcare? If No: why? If yes: how? |
| Measure | Description | Time Frame |
|---|---|---|
| Family carers from Turkish and Moroccan origin views regarding their relatives engaging in the process of ACP? | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Do you think it would be important that your relative discusses his/her wishes with someone? Can you explain it more in detail? | 12 months |
Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Hakki Demirkapu, MD | Vrije Universiteit Brussel | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Faculteit Geneeskunde en Farmacie | Brussels | 1090 | Belgium |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38916263 | Derived | Demirkapu H, Edally W, De Vleminck A, Van den Block L, De Maesschalck S, Devroey D. Views on advance care planning of family members of older adults with Turkish and Moroccan backgrounds: An exploratory interview study. Palliat Med. 2024 Oct;38(9):1000-1009. doi: 10.1177/02692163241261207. Epub 2024 Jun 25. |
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one to one interviews
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| 12 months |
| How do family carers of older adults with Turkish and Moroccan origin prefer to engage in the process of ACP for their relatives? | This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about speaking openly with your relative about ACP? Who do you think should be involved? Which role do you want in this process?
| 12 months |