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| Name | Class |
|---|---|
| Geriatric Education and Research Institute | OTHER_GOV |
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The study uses the Reach, Effectiveness, Adoption, Implementation and Maintenance (RE-AIM) framework to assess the Carer Matters programme for dementia caregivers in Singapore. A parallel mixed-methods study design is applied to assess the programme's feasibility and effectiveness.
A mixed-methods study to (1) Evaluate the feasibility of Carer Matters for caregivers of PwD and to (2) Explore perspectives of key stakeholders who are directly or indirectly involved with Carer Matters, to better understand the potential sustainability of this framework.
The objectives of are as follows:
The study will involve six inpatient wards of a 1,700-bedded tertiary care hospital which are piloting Carer Matters. These wards comprise of four acute wards and two sub-acute wards. They are selected as they admit a comparatively greater number of patients with dementia than other wards in the hospital. The study will be conducted over 12 months.
Quantitative data is based off programme data collected from all caregivers who undergo Carer Matters. Hence, it will consist of all dementia caregivers whose care recipient is admitted into the pilot wards and agree to participate in Carer Matters.
Qualitative data is based off interviews of key stakeholders of the different components of the Carer Matters programme. The key stakeholders comprises: (1) Family caregivers of PwD (n = 25 to 30), (2) Ward nurses (n= 8 to 10), (3) Care support nurses (n = 2 to 3), (4) Intervention programmes facilitators and standardized patients (n = 3), (5) Community partners and hospital leaders (n = 4), and (6) Other clinicians - medical social workers, physiotherapists, occupational therapists and doctors (n = 4 to 5).
Both qualitative and quantitative data will be triangulated using the RE-AIM framework address the research objectives of the study. These insights will then be used to generate an updated Theory of Change model explaining how SHARE improves caregiver capacity for sustained caregiving. This final model will reflect the processes and mechanisms of Carer Matters that contribute towards the short, medium and long-term outcomes intended, and can serve as a guide for future researchers and practitioners.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Caregivers | Caregivers of persons with dementia supported by the Carer Matters programme |
| |
| Nurses | Ward nurses who collaborate with the Carer Matters team |
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| Programme facilitators | Facilitators of programmes organised through Carer Matters |
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| Care Support Nurses | Nurses trained to deliver support and assistance as part of Carer Matters Programme |
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| Community partners and hospital leaders | Key policy makers and community leaders who partner with the Carer Matters programme to ensure its success |
| |
| Other clinicians (e.g. Social workers, Physiotherapists, doctors) | Other clinicians who refer caregivers to the Carer Matters programme |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| SHARE Programme | Behavioral | SHARE is Singapore's first 'Hospital-to-Home' programme to screen, identify and provide targeted interventions for caregivers at-risk of caregiver burden. Our interventions include psychosocial and emotional preparation of caregivers' mental resilience, and long-term engagement initiatives to connect caregivers into an integrated network of peers and community support services, delivered by programme facilitators and care support nurses. Key stakeholders essential for the success of share include ward nurses and clinicians who refer caregivers to SHARE and community partners and hospital leaders. This study seeks to recruit all of these individuals to better understand their experience of SHARE and the facilitators and barriers to its successful rollout to better evaluate the feasibility of SHARE in the hospital to home setting. |
| Measure | Description | Time Frame |
|---|---|---|
| Number of participants recruited into programme | Reach of Carer Matters - Whether Carer Matters Programme affects target population of caregivers. Data collected from programme logs of caregivers recruited not programme and sign-up rates for programmes recommended to participants | Data will be collected over one year, the duration of the first year of the intervention. |
| Self-reported anxiety scores of CARERS programme participants | Whether Carer Matters Programme brings about the desired effects in caregiver participants - Reduced anxiety. Data collected through HADS tool administered to caregivers attending CARERS programme. | Data will be collected over one year, the duration of the first year of the intervention. |
| Self-reported depression scores of CARERS programme participants | Whether Carer Matters Programme brings about the desired effects in caregiver participants - Reduced depressive symptoms. Data collected through HADS tool administered to caregivers attending CARERS programme. | Data will be collected over one year, the duration of the first year of the intervention. |
| Self-reported dementia knowledge scores of dementia programme participants | Whether Carer Matters Programme brings about the desired effects in caregiver participants - Increased dementia knowledge. Data collected through dementia knowledge test designed by team, administered to caregivers attending dementia programme. | Data will be collected over one year, the duration of the first year of the intervention. |
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Inclusion Criteria:
Exclusion Criteria: any potential participant who refuses to have their interviews recorded
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All eligible caregivers whose person with dementia are admitted into the pilot wards and receive the SHARE programme will be invited to participate
All eligible ward nurses and clinicians who work in pilot wards where SHARE is ongoing will be invited to participate.
All eligible care support nurses and programme facilitators will be invited to participate, as they are all involved in SHARE.
Eligible hospital leaders and community leaders who have worked with the SHARE programme will be invited to participate.
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| Name | Affiliation | Role |
|---|---|---|
| Ee Yuee Chan, PhD | Tan Tock Seng Hospital | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Tan Tock Seng Hospital | Singapore | Singapore |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 39695613 | Derived | Wu LT, Glass GF Jr, Chew EYH, Ng EJY, Chan EY. Developing a theory of change to guide the design and implementation of a caregiver-centric support service. BMC Health Serv Res. 2024 Dec 18;24(1):1620. doi: 10.1186/s12913-024-11931-y. | |
| 35854296 | Derived | Chan EY, Wu LT, Ng EJY, Glass GF Jr, Tan RHT. Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters. BMC Health Serv Res. 2022 Jul 19;22(1):933. doi: 10.1186/s12913-022-08317-3. |
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No plans for IPD sharing, due to sensitivity of information shared over interviews.
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| Type | Date | Date Unknown |
|---|---|---|
| Release | Apr 26, 2022 | |
| Reset | Jan 26, 2023 | |
| Release | Jan 30, 2023 | |
| Reset | Nov 8, 2023 |
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| Type | Includes Protocol | Includes SAP | Includes ICF | Document Label | Document Date | Document Uploaded Date | Document File Name |
|---|---|---|---|---|---|---|---|
| Prot | Yes | No | No | Study Protocol | May 1, 2021 | Jan 18, 2022 | Prot_000.pdf |
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| Release Date | Unrelease Date | Unrelease Date Unknown | Reset Date | MCP Release Number |
|---|---|---|---|---|
| Apr 26, 2022 | Jan 26, 2023 | |||
| Jan 30, 2023 |
| ID | Term |
|---|---|
| D000084802 | Caregiver Burden |
| D003704 | Dementia |
| ID | Term |
|---|---|
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
| D001927 | Brain Diseases |
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| Nov 8, 2023 |
| D002493 |
| Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
| D001523 | Mental Disorders |