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To develop a cancer center level practice intervention to promote treatment adherence and reduce outcome disparities in pediatric cancer survivors
To conduct a pilot study to assess the feasibility and acceptability of the Social Determinants of Adherence intervention
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Intervention - Pediatric parent/caregiver | Experimental | Questionnaires along with educational videos |
|
| Clinicians | Experimental | Will complete pre and post survey about medication education practices |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Patient participation | Behavioral | Questionnaire |
| |
| Measure | Description | Time Frame |
|---|---|---|
| Retention rates | Feasibility of intervention as assessed by retention rates | Up to 8 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Feasibility of universal SDOA screening | Will be assessed by results of SDOA questionnaire an 8 item questionnaire rated on a 5-point Likert scale (0-I never experienced this ; 5 - I experience this quite a lot) | up to 8 weeks |
| Provider satisfaction with barrier reports |
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Inclusion Criteria:
Parents/caregivers of pediatric patients must meet the following criteria to be eligible:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Elizabeth Bouchard, MD | Roswell Park Comprehensive Cancer Center | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Roswell Park Cancer Institute | Buffalo | New York | 14263 | United States |
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| ID | Term |
|---|---|
| D055118 | Medication Adherence |
| ID | Term |
|---|---|
| D010349 | Patient Compliance |
| D010342 | Patient Acceptance of Health Care |
| D000074822 | Treatment Adherence and Compliance |
| D015438 | Health Behavior |
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| Clinician barrier reports |
| Other |
How many times a 7 question Survey on medication education practices is opened |
|
REDCap analytics will track the rate of opened barrier reports |
| up to 8 weeks |
| D001519 | Behavior |