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| Name | Class |
|---|---|
| European Clinical Trial Experts Network | OTHER |
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The aim of this study is to assess the joint involvement (shoulder - ankle - knee - elbow - wrist) in patients with Ehlers-Danlos Syndrome and treated by surgery.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Elher-Danlos syndrome patients treated with orthopedic surgery |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| A joint functional score based on the affected joint | Behavioral | A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: Shoulder (SSV; QuickDash), Knee (Lysholm tenger), Ankle (EFAS), Elbow and wrist (QuickDash) ) |
| Measure | Description | Time Frame |
|---|---|---|
| Joint function score according to the affected joint | A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,:
| 1 day |
| Joint function score according to the affected joint | A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,:
| 1 day |
| Joint function score according to the affected joint | A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,:
| 1 day |
| Joint function score according to the affected joint | A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: -Elbow and wrist (QuickDash) ) | 1 day |
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Inclusion Criteria:
Exclusion Criteria:
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Patient over 18 years-old, suffering from Ehler-Danlos syndrome treated with surgery
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Clinique Maussins-Nollet | Paris | 75019 | France | |||
| Hôpital Raymond Poincaré |
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| ID | Term |
|---|---|
| D004535 | Ehlers-Danlos Syndrome |
| ID | Term |
|---|---|
| D020141 | Hemostatic Disorders |
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
| D006474 | Hemorrhagic Disorders |
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| Garches |
| Île-de-France Region |
| 92380 |
| France |
| D006402 |
| Hematologic Diseases |
| D006425 | Hemic and Lymphatic Diseases |
| D012868 | Skin Abnormalities |
| D000013 | Congenital Abnormalities |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D012873 | Skin Diseases, Genetic |
| D030342 | Genetic Diseases, Inborn |
| D003095 | Collagen Diseases |
| D003240 | Connective Tissue Diseases |
| D017437 | Skin and Connective Tissue Diseases |
| D012871 | Skin Diseases |