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| ID | Type | Description | Link |
|---|---|---|---|
| 2021-A00041-40 | Other Identifier | ID RCB number |
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| Name | Class |
|---|---|
| URC-CIC Paris Descartes Necker Cochin | OTHER |
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Using "big data" and artificial intelligence techniques, it becomes possible to envision algorithms for managing childhood asthma on a daily basis.
In order to develop such tools, it is necessary to determine with asthma stakeholders (children, parents, doctors) the parameters that future algorithms should seek to maximize / minimize.
The main objective of the study is to quantify the respective importance of each of the goals that children with asthma, parents, and their doctors seek to achieve when taking / supervising / prescribing a background therapy.
Using "big data" and artificial intelligence techniques, it becomes possible to envision algorithms for managing childhood asthma on a daily basis.
In order to develop such tools, it is necessary to determine with asthma stakeholders (children, parents, doctors) the parameters that future algorithms should seek to maximize / minimize.
The main objective of the study is to quantify the respective importance of each of the goals that children with asthma, parents, and their doctors seek to achieve when taking / supervising / prescribing a background therapy.
To do this, parents and children fill out a paper questionnaire, which is completed by their doctor, when they come to the hospital for consultation, hospitalization, or to perform lung function tests.
Concerning children and parents, these questionnaires include a part aimed at prioritizing each person's objectives and a second part collecting general information regarding their characteristics (age, sex, asthma history, etc.).
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients with asthma | Children and adolescents aged 8 to 17 years old with a doctor's diagnosis of asthma and controller asthma treatment |
| |
| Holders of parental authority | Holders of parental authority of patients with asthma described in group A |
| |
| Doctors | Doctors caring for patients with asthma described in group A |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Questionnaires | Other | Questionnaire in two parts: one part on the objectives related to taking the treatment and the objectives related to the treatment modality and a second part on the general characteristics of each participant and the characteristics of the child's asthma. |
| Measure | Description | Time Frame |
|---|---|---|
| Mean score attributed to each goal | Children, their parents (or holders of parental authority), and their doctors will be asked to allocate 20 points to 7 goals they want to prevent with the asthma controller treatment, and another 20 points to 5 goals regarding their treatment modality (more discreet, easier to take, etc). The score for each goal will range from 0 (objective not important to the respondent) to 20 (objective of major importance to the respondent). | Day 0 |
| Measure | Description | Time Frame |
|---|---|---|
| Correlation of goals between respondents | For each goal, the correlation of the scores attributed by children, their parents, and their doctors, will be calculated. | Day 0 |
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Inclusion Criteria:
Exclusion Criteria:
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Participants will be recruited in hospitals in the Ile-de-france region
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| Name | Affiliation | Role |
|---|---|---|
| David Drummond, MD | Assistance Publique - Hôpitaux de Paris | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hôpital Ambroise Paré | Boulogne-Billancourt | 92100 | France | |||
| Hôpital Louis Mourier |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38389509 | Result | Masrour O, Personnic J, Amat F, Abou Taam R, Prevost B, Lezmi G, Gonsard A, Nathan N, Pirojoc A, Delacourt C, Wanin S, Drummond D. Objectives for algorithmic decision-making systems in childhood asthma: Perspectives of children, parents, and physicians. Digit Health. 2024 Feb 21;10:20552076241227285. doi: 10.1177/20552076241227285. eCollection 2024 Jan-Dec. |
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| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| Colombes |
| 92700 |
| France |
| Hôpital Trousseau-Allergologie pédiatrique | Paris | 75012 | France |
| Hôpital Trousseau-Pneumologie pédiatrique | Paris | 75012 | France |
| Hôpital Necker-Enfants Malades | Paris | 75015 | France |
| Hôpital Robert Debré | Paris | 75019 | France |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |