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| Name | Class |
|---|---|
| Brown University | OTHER |
| National Institute on Aging (NIA) | NIH |
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Due to Coronavirus-19, we are exploring the plausibility of delivering the Me & My Wishes intervention via telehealth.
Me & My Wishes are videos of nursing home residents talking about their preferences for care, including four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. Knowing what residents want is essential to staff's ability to provide quality care and can inform family caregivers decision making especially in later stages of life as the resident's cognition declines-a time when family caregivers often feel unprepared. Persons with mild to moderate dementia can accurately express their everyday and end of life preferences, however, stereotypes persist about the decision making abilities of people with dementia that often prevent their involvement in conversations about care. The investigators propose to explore the feasibility of delivering Me & My Wishes via a telehealth platform.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Telehealth | Other | Me & My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me & My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Me & My Wishes | Behavioral | Me & My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me & My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. |
| Measure | Description | Time Frame |
|---|---|---|
| Feasibility of telehealth-delivered Me & My Wishes | ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better | baseline |
| Feasibility of telehealth-delivered Me & My Wishes | ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better | 90 days |
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Resident Inclusion Criteria:
Family Inclusion Criteria:
Staff Inclusion Criteria:
Resident Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Gail Towsley | University of Utah | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Marquis Forest Grove Post Acute Rehab | Forest Grove | Oregon | 97116 | United States | ||
| Marquis Wilsonville Assisted Living |
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| Type | Date | Date Unknown |
|---|---|---|
| Release | Jul 3, 2024 | |
| Reset | Jul 29, 2024 | |
| Release | Aug 5, 2025 | |
| Reset | Aug 21, 2025 |
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| Release Date | Unrelease Date | Unrelease Date Unknown | Reset Date | MCP Release Number |
|---|---|---|---|---|
| Jul 3, 2024 | Jul 29, 2024 | |||
| Aug 5, 2025 |
The investigators propose to examine the plausibility of delivering Me & My Wishes using a telehealth platform. A convenience sample of five residents, their family members and long term care staff will be enrolled.
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| Wilsonville |
| Oregon |
| 97070 |
| United States |
| Mission at Maple Springs | Brigham City | Utah | 84032 | United States |
| Aug 21, 2025 |