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Patients who start home dialysis take on an added responsibility and that can be challenging. The investigators are interested in studying the patient and care partner perspective on the challenges that the participants faced on home dialysis and what interventions could help support them better by holding focus group discussions.
Home dialysis has many advantages compared to in-center hemodialysis (ICHD) including better quality of life and lower healthcare costs. Transfer from home dialysis to ICHD is disruptive to the patients' lives and in some cases may be preventible. Patients do not infrequently transfer to ICHD due to psychosocial reasons, which may be multi-factorial and hard to capture.
The aim of this study is to explore patients' and care partners' perspectives and experiences of the psychosocial factors that make home dialysis challenging and that ultimately contribute to transfer to ICHD during focus group discussions. The investigators will ask them to describe issues that may compound patient and care partner burnout; for those who have already transferred to hemodialysis, the investigators will specifically ask what factors contributed to their transfer off of home dialysis. the investigators will also ask for feedback on what interventions may have helped to prevent the transfer and/or burnout.
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| None. This is a qualitative interview study. | Other | There is no intervention in this study. This is a qualitative research study where participants will take part in focus group discussions. |
| Measure | Description | Time Frame |
|---|---|---|
| Patients and care partner experience on home dialysis | During the focus group discussion, the participants will be asked to account their experience on home dialysis and the challenges that they faced while on the modality. Since it is a qualitative study the responses will be grouped to identify any common themes. | At the time of focus group discussion |
| Measure | Description | Time Frame |
|---|---|---|
| patient and care partner perspective on possible interventions | During the focus group discussion the participants will be asked if there were any interventions that were offered or if there are any interventions that would have helped support them better on home dialysis. Since it is a qualitative study the responses will be grouped to identify any common themes. | At the time of the focus group discussion |
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Inclusion Criteria:
Exclusion Criteria:
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ESRD patients at Satellite health care who transferred to ICHD from home dialysis in the last year and home dialysis patients who are identified as high risk for transfer to ICHD by the clinical team.
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| Name | Affiliation | Role |
|---|---|---|
| Wael F Hussein, MBBS | Satelite Health care | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Satellite Healthcare Inc | San Jose | California | 95128 | United States |
No individual person data will be available to anyone other than Satellite Healthcare Research employees.
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| ID | Term |
|---|---|
| D007676 | Kidney Failure, Chronic |
| ID | Term |
|---|---|
| D051436 | Renal Insufficiency, Chronic |
| D051437 | Renal Insufficiency |
| D007674 | Kidney Diseases |
| D014570 | Urologic Diseases |
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| comparison between groups | Different themes between the participant responses will be compared after a thematic analysis. | At the time of focus group |
| D052776 |
| Female Urogenital Diseases |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
| D052801 | Male Urogenital Diseases |
| D002908 | Chronic Disease |
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |