Parkinson's Foundation PD GENEration Genetic Registry
Parkinson's Foundation PD GENEration Genetic Registry
Development of a central repository for PD-related genomic data for future research.
The purpose of this study is to develop a central repository for PD-related genomic data by individuals who consent to deposit their data and bank their residual DNA obtained through clinical genetic testing for future research use.
Inclusion Criteria:
Study Population 1: PWP (open for recruitment)
Study Population 2: People at risk of developing PD (not open for recruitment)
1. Family members of Study Population 1 may be invited to participate in the study if confirmatory genetic testing is deemed necessary by the genetic testing laboratory.
Exclusion Criteria:
kghosh@parkinson.org1-800-473-4636
Birmingham, Alabama 35294, United States
faribarahimi@uabmc.edu
San Francisco, California 94143, United States
Aventura, Florida 33180, United States
Boca Raton, Florida 33486, United States
Golden Valley, Minnesota 55427, United States
Chapel Hill, North Carolina 27599, United States
caitlin.goodman@commonspirit.org
newmankennethal@uams.edu
ldamron@health.ucsd.edu858-822-5873
Ashurlock@mednet.ucla.edu
aaron.daley@ucsf.edu
janet.clarke@cuanschutz.edu
brandon.canty@hhchealth.org
nrios@vintrials.com
karias@parkinsonscenter.org
kweldon@parkinsonscenter.org
amanda.fessenden@neurology.ufl.edu
oxt185@med.miami.edu
duartel2@ccf.org
tdurham@msm.edu
mfaouzi@queens.org
vpalakz@uic.edu
Nathan_Krinickas@rush.edu
Jacqueline_Vanegas@rush.edu
tmercado@bsd.uchicago.edu
rachel.lewandowski@northwestern.edu
lperrey@iupui.edu
heena-olalde@uiowa.edu
alanghammer@kumc.edu
rpwagn2@uky.edu
mackenzie.williams@lsuhs.edu
eonyina1@jhu.edu
rweimer@som.umaryland.edu
vibrahim@mgh.harvard.edu
Madhuri.Sangam@bmc.org
jforbes1@bidmc.harvard.edu
Taylor.R.Billeadeau@HealthPartners.Com
stenroos@rwjms.rutgers.edu
ATingin@salud.unm.edu
kelly.astudillo@nyulangone.org
maya.rawal@mountsinai.org
ah3912@cumc.columbia.edu
Hans_Nettesheim@med.unc.edu
gina.mbuyamba@atriumhealth.org
delanoky@ucmail.uc.edu
eileen.terrell@UHhospitals.org
cookj6@ccf.org
katherine.ambrogi@osumc.edu
leonarde@ohsu.edu
Neda.Almassi@pennmedicine.upenn.edu
michelle.roachman@jefferson.edu
wilsosan@musc.edu
jacqueline.c.harris@vumc.org
silvia.onofre@bcm.edu
paizc@uthscsa.edu
biggsrodrigu@uthscsa.edu
Nic.Unsworth@imail.org
virginia.norris@vcuhealth.org
nahemat@evergreenhealthcare.org
akiefer@inwresearch.com
jbayola@mcw.edu
nazish.ahmed@uhnresearch.ca
ronicohen@tlvmc.gov.il