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| Name | Class |
|---|---|
| Spinal Injury Rehabilitation Center | OTHER |
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Nepal is a low-income country with over 3 million individuals with physical disabilities and currently no government-run specialist rehabilitation services. The aim of this research proposal is to work in partnership with a Nepal Non-Governmental Organisation (NGO), the Spinal Injury Rehabilitation Centre (SIRC, Nepal) to achieve the following:
The methods to be used in each of the three work packages of this study are:
Work Package 1: Identifying baseline and context
Individuals discharged from SIRC between January 2018 and December 2019 will be identified and recruited to the study. Initially, a cross sectional study will capture their experiences and baseline community outcomes using both standardised quantitative outcome measures and qualitative data from semi-structured interviews. Recruitment and data collection for this part of the study will be conducted by partners in Nepal. Analysis and management of this data will be joint between Nepal and Leeds teams.
Work Package 2: Assessing utility of telerehabilitation to address needs
Informed by previous work package, user and stakeholder workshops will be used to explore the role of multidisciplinary video teleconferencing, telemedicine follow-up clinics, remote management using mobile phone camera monitoring and other methods identified to reach consensus on interventions to address the most pressing clinical challenges. These workshops will be facilitated by all the researchers and will involve service users, family members, clinicians, hospital managers, community health providers, NGO representatives and national policy makers.
Work Package 3: Pilot and rapid evaluation
The telerehabilitation interventions agreed in work package 2 will then be piloted by the clinical team at SIRC and the participants recruited in work package 1. This will involve post discharge follow up facilitated by the telerehabilitation system, and may result in further clinical rehabilitation care as appropriate (advice, provision of equipment, etc.).
This is followed by a rapid, mixed-methods evaluation which will assess of the feasibility and acceptability of telerehabilitation interventions by incorporating:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Telerehabilitation intervention | Experimental |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Telerehabilitation | Other | Providing multidisciplinary rehabilitation to individuals with spinal cord injury or brain injury using virtual conference methods |
|
| Measure | Description | Time Frame |
|---|---|---|
| Modified Barthel Index | Modified Barthel Index | 6 months |
| Measure | Description | Time Frame |
|---|---|---|
| Depression Anxiety Stress Scale | Depression Anxiety Stress Scale | 6 months |
| EuroQoL | EuroQoL | 6 months |
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Inclusion Criteria:
Age 18 years or above Diagnosis of spinal cord injury or acquired brain injury and received inpatient care in SIRC Discharged from SIRC between February 2018 and August 2019.
Exclusion Criteria:
Individuals who do not report any ongoing rehabilitation needs
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| Name | Affiliation | Role |
|---|---|---|
| Manoj Sivan, MD | University of Leeds | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Spinal Injury Rehabilitation Centre | Bhainsepati | Kavre | Nepal |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 36278119 | Derived | Dhakal R, Baniya M, Solomon RM, Rana C, Ghimire P, Hariharan R, Makower SG, Meng W, Halpin S, Xie SQ, O'Connor RJ, Allsop MJ, Sivan M. TEleRehabilitation Nepal (TERN) for People With Spinal Cord Injury and Acquired Brain Injury: A Feasibility Study. Rehabil Process Outcome. 2022 Oct 18;11:11795727221126070. doi: 10.1177/11795727221126070. eCollection 2022. |
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| ID | Term |
|---|---|
| D013119 | Spinal Cord Injuries |
| D000070642 | Brain Injuries, Traumatic |
| D001930 | Brain Injuries |
| D020521 | Stroke |
| ID | Term |
|---|---|
| D013118 | Spinal Cord Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D020196 | Trauma, Nervous System |
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| ID | Term |
|---|---|
| D000069350 | Telerehabilitation |
| ID | Term |
|---|---|
| D012046 | Rehabilitation |
| D000359 | Aftercare |
| D003266 | Continuity of Patient Care |
| D005791 | Patient Care |
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| D014947 | Wounds and Injuries |
| D001927 | Brain Diseases |
| D006259 | Craniocerebral Trauma |
| D002561 | Cerebrovascular Disorders |
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
| D013812 |
| Therapeutics |
| D006296 | Health Services |
| D005159 | Health Care Facilities Workforce and Services |
| D017216 | Telemedicine |
| D003695 | Delivery of Health Care |
| D010346 | Patient Care Management |
| D006298 | Health Services Administration |