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Pediatric blood cancer is the most common childhood malignancy. Despite its survival has been substantially improved, children still have to pay a high price for numerous distressing symptoms resulted from chemotherapy. Previous studies related to symptom experiences mainly focus on individual symptoms, rather than on multiple symptoms. Understanding these distressing symptoms may help healthcare professionals to develop appropriate and effective interventions with the aims of alleviating symptom severity and thus promoting the child's psychosocial well-being and quality of life.
A longitudinal study design will be conducted. A sample of 120 patients age 5-17years, diagnosed with blood cancer but not yet receive any chemotherapy and able to communicate with Cantonese and read Chinese will be recruited in the pediatric oncology ward of Hong Kong Children's Hospital.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Questionnaire | This study aims to examine the cancer patient's symptom clusters and their changes over chemotherapy among pediatric patients with blood cancer in Hong Kong |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Questionnaire | Other | Participants will complete a set of validated questionnaires (TRSC-C and demographic sheet) before chemotherapy. They also have to complete the same questionnaires (TRSC-C) again within 1 week after the 1st, 2nd, 3rd, 4th , 5th and 6th courses of chemotherapy via telephone interview by our research assistants. |
| Measure | Description | Time Frame |
|---|---|---|
| The therapy-related symptom checklist for children (TRSC-C) | For measuring the occurrence and severity of symptoms experienced by patients aged 5-17 when they undergo cancer treatment. | Before chemotherapy |
| The therapy-related symptom checklist for children (TRSC-C) at 1-week | For measuring the occurrence and severity of symptoms experienced by patients aged 5-17 when they undergo cancer treatment. | At 1-week follow-up |
| The therapy-related symptom checklist for children (TRSC-C) at 1-month | For measuring the occurrence and severity of symptoms experienced by patients aged 5-17 when they undergo cancer treatment. | At 1-month follow-up |
| The therapy-related symptom checklist for children (TRSC-C) at 3-month | For measuring the occurrence and severity of symptoms experienced by patients aged 5-17 when they undergo cancer treatment. | At 3-month follow-up |
| The therapy-related symptom checklist for children (TRSC-C) at 6-month | For measuring the occurrence and severity of symptoms experienced by patients aged 5-17 when they undergo cancer treatment. | At 6-month follow-up |
| Demographic sheet | collect the background information of our subjects, including their age, gender, educational attainment, parents' marital status and religious belief | At baseline |
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Inclusion Criteria:
Exclusion Criteria:
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We will recruit pediatric patients with blood cancer in the Hong Kong Children's Hospital
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Ka Yan Ho, PhD | Contact | 27666417 | kyeva.ho@polyu.edu.hk | |
| Ka Wai Lam, PhD | Contact | 27666420 | kwkatlam@polyu.edu.hk |
| Name | Affiliation | Role |
|---|---|---|
| Ka Yan Ho, PhD | The Hong Kong Polytechnic University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Ka Yan Ho | Recruiting | Hong Kong | Hong Kong,China | 0000 | Hong Kong |
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| ID | Term |
|---|---|
| D019337 | Hematologic Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D006402 | Hematologic Diseases |
| D006425 | Hemic and Lymphatic Diseases |
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| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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|
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |