Registry to Collect Health Information Related to Fibrolamellar Cancer

Fibrolamellar Carcinoma Global Dynamic Registry

The purpose of this study is to collect information about people with fibrolamellar cancer (FLC). This study is a registry of people with FLC around the world. This study will involve collecting information about participants, their medical history and the regular medical care they receive for FLC. The study will not provide treatment for your cancer.

Inclusion Criteria:

• Age 13 years or older.

• Personal history of histologically proven fibrolamellar carcinoma (clinical or radiographical suspicion of FLC must be confirmed at MSK or an external hospital)

• Participants must have access to electronic devices that meet the following minimum requirements:

  • Ability to connect to the internet
  • Capability of running modern internet browers (such as Google Chrome, Internet Explorer, Safari, or Mozilla Firefox).

• Participants must have a google account

Exclusion Criteria:

• Participants residing in the European Union (EU).