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| Name | Class |
|---|---|
| Ligue Pulmonaire Vaudoise | UNKNOWN |
| University Hospital, Geneva | OTHER |
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With this cross-sectional study of adult subjects with neuromuscular disease in the French-speaking part of Switzerland, we aim to explore MI-E adherence using self-report questionnaires and device data in order to identify the factors that influence the pattern of MI-E use and satisfaction with the treatment. Determining potential barriers to regular long-term home use of MI-E could help in identifying the patients who would benefit most from this therapy.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| subjects with neuromuscular disease | Adult subjects with neuromuscular disease, with an active prescription of MI-E for more than 3 months |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Mechanical insufflation/exsufflation device (MI-E) | Device | download of device (MI-E) data and self-reported satisfaction with the device |
|
| Measure | Description | Time Frame |
|---|---|---|
| Adherence to MI-E (reported) | based on self-reported use | 12 months, or since treatment initiation (> 3 months) |
| Adherence to MI-E (objective) | based on data downloads | 12 months, or since treatment initiation (> 3 months) |
| Measure | Description | Time Frame |
|---|---|---|
| Satisfaction with the device | Self-report questionnaire | 12 months, or since treatment initiation (> 3 months) |
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Inclusion Criteria:
Exclusion Criteria:
-Invasive airway
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Adult subjects with neuromuscular disease, with an active prescription of MI-E for more than 3 months
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Service de Pneumologie, CHUV | Lausanne | Canton of Vaud | 1011 | Switzerland |
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| ID | Term |
|---|---|
| D009468 | Neuromuscular Diseases |
| ID | Term |
|---|---|
| D009422 | Nervous System Diseases |
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