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The T1D Exchange Registry is a research study, conducted over time, for individuals with type 1 diabetes and their supporters. Participants volunteer to provide their data for research (for example, by answering questions in annual surveys). Once enrolled, Registry participants have the opportunity to sign up for other studies on various topics related to type 1 diabetes.
To participate, you will be asked to:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Individuals diagnosed with type 1 diabetes | T1D Exchange Registry is currently looking for participants:
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| No intervention | Other | Observational research study |
|
| Measure | Description | Time Frame |
|---|---|---|
| Gather longitudinal data from individuals living with type 1 diabetes. | Gather longitudinal data on disease, health status, and patient-reported outcomes of individuals living with type 1 diabetes. This will be achieved by presenting participants with annual questionnaires, tracking any changes in their responses over time. | 10 years |
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Inclusion Criteria:
Exclusion criteria:
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Individual diagnosed with type 1 diabetes who can access online Registry.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Kelsie LaFerrier | Contact | (617) 892-9941 | klaferriere@t1dexchange.org | |
| Julia Ravelson | Contact | (617) 892-9941 | jravelson@t1dexchange.org |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| T1D Exchange | Recruiting | Boston | Massachusetts | 02111 | United States |
The information collected in the study may be used in future studies without additional permission from you. This may include research done by other researchers. The information that may be shared will not contain any information that could identify you. There may still be a chance that someone could identify you, but this is not likely. The study results will also be made public. These results will not have any information that could identify you.
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| ID | Term |
|---|---|
| D003922 | Diabetes Mellitus, Type 1 |
| D003920 | Diabetes Mellitus |
| D007333 | Insulin Resistance |
| ID | Term |
|---|---|
| D044882 | Glucose Metabolism Disorders |
| D008659 | Metabolic Diseases |
| D009750 | Nutritional and Metabolic Diseases |
| D004700 | Endocrine System Diseases |
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| D001327 | Autoimmune Diseases |
| D007154 | Immune System Diseases |
| D006946 | Hyperinsulinism |