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Investigators plan to establish an in-depth understanding of knowledge and beliefs about palliative care in advanced Bladder Cancer patients and their caregivers, and to identify factors associated with positive and negative experiences with palliative care services among those who have received them.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Bladder Cancer Patient Participants | Participants will be scheduled for one-on-one interviews that will occur over Zoom or telephone. |
| |
| Care Givers for Bladder Cancer Patient Participants | Participants will be scheduled for one-on-one interviews that will occur over Zoom or telephone. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Surveys | Other | Survey will be administered involving questions regarding knowledge and perception of palliative care. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Development of palliative care knowledge and beliefs | Thematic analysis of interviews transcriptions to identify the themes that underpin the development of palliative care beliefs among patients with muscle invasive bladder cancer. | 12 Months |
| Proportion with accurate palliative care knowledge and beliefs | Proportion of patients correctly answering each palliative care knowledge question. | 12 Months |
| Measure | Description | Time Frame |
|---|---|---|
| Association between Bladder Cancer stage and palliative care knowledge | Analysis of variance calculated for the mean number of subjects with each cancer stage correctly answering each palliative care knowledge question | 12 Months |
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Inclusion Criteria:
Exclusion Criteria:
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Bladder Cancer patient participants and care givers will be recruited from the Moffitt Cancer Genitourinary Oncology clinic and the Supportive Care clinic.
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| Name | Affiliation | Role |
|---|---|---|
| Scott Gilbert, MD | Moffitt Cancer Center | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Moffitt Cancer Center | Tampa | Florida | 33612 | United States |
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| Label | URL |
|---|---|
| Moffitt Cancer Center Clinical Trial Search | View source |
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| ID | Term |
|---|---|
| D001749 | Urinary Bladder Neoplasms |
| ID | Term |
|---|---|
| D014571 | Urologic Neoplasms |
| D014565 | Urogenital Neoplasms |
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
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| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| D052776 |
| Female Urogenital Diseases |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
| D001745 | Urinary Bladder Diseases |
| D014570 | Urologic Diseases |
| D052801 | Male Urogenital Diseases |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |