Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| Kiwanis Neurological Research Foundation | UNKNOWN |
Not provided
Not provided
Not provided
Not provided
This study aims to quantify resilience in survivors of a spinal cord injury. The study will consist of structured interviews and self-reported surveys. We will look for common themes between participants at different stages of injury (1-5 years, 5-15 years, >15 Years).
The goal of this project is to broaden the understanding of the lived experience of aging with a disability, from the perspectives of individuals with physical disabilities resulting from spinal cord injury (SCI). The specific objectives of this project are to:
Through in-depth interviews and detailed surveys, we will explore how people with SCI attain and maintain optimal quality of life as they age, and how their quality of life relates to resiliency as they traverse the path of aging with SCI. We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability.
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| 1-5 Years post | Persons with Spinal Cord Injury occurring between 1-5 years prior |
| |
| 5-15 Years post | Persons with Spinal Cord Injury occurring between 5-15 years prior |
| |
| >15 Years post | Persons with Spinal Cord Injury occurring at least 15 years prior |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Structured Interview | Other | Structured interview with research staff about your experience living with spinal cord injury |
|
| Measure | Description | Time Frame |
|---|---|---|
| Themes Survey | Common themes from the structured interviews | 1 day (Single time point) |
| Measure | Description | Time Frame |
|---|---|---|
| Resilience | Measure of resilience from Connor-Davidson Resilience Scale [0-40], low score indicates greater resilience | 1 day (Single time point) |
| Measure | Description | Time Frame |
|---|---|---|
| Health Questionnaire Surveys | Short Form-12 Health Survey [30-70] 50 indicates US average, values higher than 50 indicate better outcomes | 1 day (Single time point) |
Inclusion Criteria:
Not provided
Not provided
Persons who have experienced spinal cord injury at least 1 year prior to enrollment
Not provided
| Name | Affiliation | Role |
|---|---|---|
| Elliot Roth, MD | Shirley Ryan AbilityLab | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Shirley Ryan AbilityLab | Chicago | Illinois | 60611 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38649756 | Derived | Roth EJ, Lovell L, Barry A. Perspectives on factors influencing quality of life in persons with long-term spinal cord injury: a qualitative study. Spinal Cord. 2024 Jun;62(6):343-347. doi: 10.1038/s41393-024-00991-w. Epub 2024 Apr 22. |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| ID | Term |
|---|---|
| D013119 | Spinal Cord Injuries |
| ID | Term |
|---|---|
| D013118 | Spinal Cord Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D020196 | Trauma, Nervous System |
Not provided
Not provided
Not provided
Not provided
Not provided
| D014947 | Wounds and Injuries |