GEnetic Counseling Through Virtual Visits in Parkinson's Disease

GEnetic Counseling Through VIRTUAL Visits in Parkinson's Disease

The research study is being conducted to compare methods of virtual genetic counseling for people with Parkinson's disease.

This research will evaluate different virtual methods of pre-test genetic counseling and post-test genetic results disclosure in people with Parkinson's disease. Participants will be randomized to receive different methods of genetic counseling using web-based, telephone, or telehealth methods. In both pre- and post-test counseling phases, remote genetic counseling methods will be compared to demonstrate equivalence. The primary outcomes will be equivalence on genetics knowledge and outcomes scales, and the revised impact of events scale. The purpose is to develop effective and scalable approaches to genetic counseling. This work is crucial for patient safety and will improve access to care through novel genetic counseling approaches.

Inclusion Criteria:

• Provision of signed and dated informed consent form
• Stated willingness to have clinical confirmation genetic testing, and comply with all study procedures and availability for the duration of the study
• Male or female, over the age of 21.
• English Speaking

Exclusion Criteria:

• Prior genetic counseling and/or clinical testing specifically for Parkinson's disease
• Montreal Cognitive Assessment (MoCA) < 21, or a prior diagnosis of dementia during the screening phase