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Pandemic period could affect the disabled children's rehabilitation and follow-up negatively because of preventive measures and this could create adverse results on their parents.
In this research, it is aimed to determine the positive and negative effects of pandemic on parents and disabled children and to provide an insight for future solutions.
To determine the effect of COVID-19 pandemic and the possible difficulties experienced by the parents of disabled children, a questionnaire was prepared. It takes approximately 10-15 minutes to complete the survey. Questionnaire is loaded to qualtrics program and sent to the families by e-mail or social media accounts.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Parents who have a disabled child or children | Other | Parents having disabled child or children will be included in the research and it will be wanted to complete the survey questionary |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Difficulties lived by disabled children's parents in the period of COVID-19 pandemic | Other | It will be a cross sectional study to obtain the information on difficulties lived by disabled children's parents during recent pandemic period |
| Measure | Description | Time Frame |
|---|---|---|
| A questionnaire that we created will be used to determine the difficulties experienced by disabled children's parents during Covid 19 pandemic related to their medical follow-up | Difficulties related to rehabilitation facilities, other medical conditions or ortosis could increase because of Covid 19 pandemic unique conditions | 4 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| The Fear of COVID-19 Scale | The Fear of COVID-19 Scale, a seven-item scale, has robust psychometric properties. It is reliable and valid in assessing fear of COVID-19 among the general population and will also be useful in allaying COVID-19 fears among individuals. Score is minimum 7 pointts and maximum 35 points. | 4 weeks |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Resa Aydin, Professor | İstanbul University İstanbul Faculty of Medicine | Principal Investigator |
| Evrim Karadağ Saygı, Professor | Marmara University Faculty of Medicine | Principal Investigator |
| Özden Özyemisçi Taşkıran, Professor | Koc University Faculty of Medicine | Principal Investigator |
| Nalan Çapan, Professor | İstanbul University İstanbul Faculty of Medicine | Principal Investigator |
| Ebru Yilmaz Yalçınkaya, Professor | Health Science University | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Health Science University Gaziosmanpasa Training and Research Hospital | Istanbul | Gaziosmanpasa | 34255 | Turkey (Türkiye) |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 32226353 | Background | Ahorsu DK, Lin CY, Imani V, Saffari M, Griffiths MD, Pakpour AH. The Fear of COVID-19 Scale: Development and Initial Validation. Int J Ment Health Addict. 2022;20(3):1537-1545. doi: 10.1007/s11469-020-00270-8. Epub 2020 Mar 27. |
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Study protocol was established by Berrin Huner and Ebru Yilmaz Yalcınkaya Statistical analysis (Power analysis) was established by Ozden Ozyemisci Taskiran Informed consent was written by Berrin Huner
Research is planned to bu conducted between June 15 th and July 15 th 2020. After 15 th of July in 1 week coming statistical analysis will be finished and than in 3 weeks article will be written
In necessary cases colleced data from the research will be shared with the local ethical committe
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| ID | Term |
|---|---|
| D000086382 | COVID-19 |
| D002547 | Cerebral Palsy |
| D009136 | Muscular Dystrophies |
| ID | Term |
|---|---|
| D011024 | Pneumonia, Viral |
| D011014 | Pneumonia |
| D012141 | Respiratory Tract Infections |
| D007239 | Infections |
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One study group will be researched- only disabled children's parents, in one arm -way
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No masking will be done
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| D014777 |
| Virus Diseases |
| D018352 | Coronavirus Infections |
| D003333 | Coronaviridae Infections |
| D030341 | Nidovirales Infections |
| D012327 | RNA Virus Infections |
| D008171 | Lung Diseases |
| D012140 | Respiratory Tract Diseases |
| D001925 | Brain Damage, Chronic |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D020966 | Muscular Disorders, Atrophic |
| D009135 | Muscular Diseases |
| D009140 | Musculoskeletal Diseases |
| D009468 | Neuromuscular Diseases |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |