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The App-eMot-Quali project proposed here is the first phase in the implementation of a care pathway supported by a digital tool. It consists of a qualitative study allowing individual interviews to be conducted with parents of infants at high risk of cerebral palsy and health professionals in order to identify and precisely describe the needs and difficulties present during the child's rehabilitative care during the first months of life.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Parents | man or woman |
| |
| Professionals | health professionals in charge of monitoring children |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Focus group | Other | Holding of a focus group by a sociologist |
| |
| Measure | Description | Time Frame |
|---|---|---|
| Typology and categorization of the needs and difficulties encountered by the parents. | collected through semi-directive individual interviews with parents | Through study completion an average of 21 months |
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Inclusion Criteria:
For the parents:
Parents of children under 24 months of age at high risk of cerebral palsy who have given their oral consent.
Children at high risk of cerebral palsy are defined as :
The selection of parents may be retrospective with less than 24 months since hospital discharge.
For the health professionals:
Physiotherapists, psychomotricians, psychologists and doctors involved in the care of children at high risk of cerebral palsy.
Exclusion Criteria:
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Parents of children under 24 months of age and health professionals working in the paediatric intensive care unit at the Dijon Bougogne University Hospital.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Chu Dijon Bourgogne | Dijon | 21000 | France |
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| ID | Term |
|---|---|
| D002547 | Cerebral Palsy |
| ID | Term |
|---|---|
| D001925 | Brain Damage, Chronic |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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| ID | Term |
|---|---|
| D017144 | Focus Groups |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| Semi-directive interview |
| Other |
Conducting a semi-directive interview by a sociologist after discharge from hospital |
|
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |