Not provided
| ID | Type | Description | Link |
|---|---|---|---|
| 5R01AG057855-02 | U.S. NIH Grant/Contract | View source | |
| 3R01AG057855-02S1 | U.S. NIH Grant/Contract | View source |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| National Institute on Aging (NIA) | NIH |
Not provided
Not provided
Not provided
Not provided
Rural caregivers face challenges of geographic isolation and lower health care access and quality. Many rural dementia caregivers experience serious health consequences due to caregiving responsibilities that can limit their ability to maintain their caregiving role. Thus, there is a pressing need for effective, scalable, and accessible programs to support rural dementia caregivers.
Online programs offer a convenient and readily translatable option for program delivery because they can be accessed by caregivers in the home and at the convenience of the user. Building Better Caregivers is an online 6-week, interactive, small-group self-management, social support, and skills-building workshop developed for caregivers of individuals with Alzheimer's disease or related dementia.
The investigators will conduct a hybrid effectiveness-implementation randomized controlled trial that will enroll and randomize 640 rural dementia caregivers into two groups: the intervention (workshop) group and the attention control group. Caregivers will be recruited throughout the United States. Primary outcomes will be caregiver stress and depressive symptoms. The investigators hypothesize that stress scores and depressive symptoms will be significantly improved at 12 months in the intervention group versus control group. The investigators will also identify key strengths (facilitators) and weaknesses (barriers) of workshop implementation. The investigators will use the RE-AIM implementation framework and a mixed methods approach to identify implementation characteristics pertinent to both caregivers and rural community organizations.
If the Building Better Caregivers workshop is proven to be effective, this research has the potential to open new research horizons, particularly on how to reach and effectively support isolated dementia caregivers in rural areas with an intervention that is scalable, even in low-resourced settings. If the workshop can achieve its goals with rural dementia caregivers, some of those most isolated, it would also be expected to be scalable in other low-resourced settings (e.g., in urban or suburban environments).
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Building Better Caregivers Workshop Group | Experimental | Building Better Caregivers Workshop is a 6-week online self-management and skills building workshop. Participants receive the online workshop as soon as possible after randomization. |
|
| Attention Control Group | Active Comparator | Participants will be offered the online workshop after the 12 month trial is completed if they so desire. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Building Better Caregivers Workshop | Behavioral | Workshops consist of small group or about 20-25 persons. Two peer co-facilitators (caregiver themselves) will guide workshop activities. Participants will receive a workshop booklet. Each week, participants will log on at least 2-3 times for a total time of approximately two hours. Participants do not require "real time" attendance at pre-determined times. |
| Measure | Description | Time Frame |
|---|---|---|
| Personal Health Questionnaire Depression (PHQ-8) Scale Score | Personal Health Questionnaire Depression (PHQ-8) scale. The scale score is calculated by summing each item to produce a total score between 0 and 24, with higher scores indicating worse outcome. | 12 months |
| Visual Numeric Stress Scale | A visual numeric stress scale. The scale score ranges from 0 to 10, with higher score indicating worse outcome. | 12 months |
| Measure | Description | Time Frame |
|---|---|---|
| Personal Health Questionnaire Depression (PHQ-8) Scale Score | Personal Health Questionnaire Depression (PHQ-8) scale. The scale score is calculated by summing each item to produce a total score between 0 and 24, with higher scores indicating worse outcome. | 6 months |
| Visual Numeric Stress Scale Score |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Affiliation | Role |
|---|---|---|
| Veronica Yank, MD | University of California, San Francisco | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of California, San Francisco | San Francisco | California | 94118 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 41164840 | Derived | Santoyo-Olsson J, Covinsky KE, Cheng J, Gallagher Thompson D, Yank V. Utilization of home- and community-based services among rural family caregivers of persons with dementia: the role of the area deprivation index. Front Public Health. 2025 Oct 14;13:1688161. doi: 10.3389/fpubh.2025.1688161. eCollection 2025. | |
| 37897201 | Derived | Santoyo-Olsson J, Covinsky KE, Chesla CA, Lorig K, Gallagher-Thompson D, Cheng J, Luzanilla M, Macias Romo E, Aguayo Ramirez G, Karliner L, Yank V. Predictors of Psychological Distress Among Rural Family/Friend Caregivers of People Living With Dementia in the United States: Consequences of the COVID-19 Pandemic. J Gerontol B Psychol Sci Soc Sci. 2024 Feb 1;79(2):gbad164. doi: 10.1093/geronb/gbad164. |
Not provided
Not provided
The data to be shared will be individual participant data that underlie the results reported in published article(s), after deidentification (e.g., text, tables, figures, and appendices). The additional and related documents that will be available are study protocol and data dictionary. The data will become available beginning within 3 months of article publication and ending 5 years following article publication.The access criteria for the data to be shared will include researchers who provide a methodologically sound proposal in order to achieve aims in the approved proposal including performance of meta-analysis of individual participant data. Proposals should be directed to veronica.yank@ucsf.edu. To gain access, data requestors will need to sign a data access agreement. Data will be available for 5 years at a third party website (Link to be included later).
The data will become available beginning within 3 months of article publication and ending 5 years following article publication.
The access criteria for the data to be shared will include researchers who provide a methodologically sound proposal in order to achieve aims in the approved proposal including performance of meta-analysis of individual participant data. Proposals should be directed to veronica.yank@ucsf.edu. To gain access, data requestors will need to sign a data access agreement. Data will be available for 5 years at a third party website (Link to be included later).
Not provided
Not provided
Not provided
Not provided
| ID | Title | Description |
|---|---|---|
| FG000 | Building Better Caregivers Workshop Group | The Building Better Caregivers Workshop is a 6-week online small group workshop. Participants received self-management and caregiving skills-building training and social support. They also received a workbook to keep. |
| FG001 | Attention Control Group |
| Title | Milestones | Reasons Not Completed | |||||
|---|---|---|---|---|---|---|---|
| Overall Study |
|
Not provided
Not provided
| Type | Includes Protocol | Includes SAP | Includes ICF | Document Label | Document Date | Document Uploaded Date | Document File Name |
|---|---|---|---|---|---|---|---|
| Prot_SAP | Yes | Yes | No | Study Protocol and Statistical Analysis Plan: Protocol and SAP | Aug 15, 2018 |
Not provided
Not provided
Not provided
Not provided
Not provided
|
| Attention Control | Behavioral | Participants will receive two brief 15-30 minutes phone calls by study staff, and will receive a handbook on dementia and caregiver resources while they wait for the workshop. |
|
A visual numeric stress scale. The scale score ranges from 0 to 10, with higher score indicating worse outcome. |
| 6 months |
| Short Caregiver Self-Efficacy Scale Score | Short Caregiver Self-Efficacy scale (8-items). The scale scores is calculated by taking the mean of the items to produce a total score between 1 and 10, with higher scores indicating better outcome. | 12 months |
| Zarit Burden Interview-12 (ZBI-12) Scale Score | Short form of the Zarit Burden Interview-12 (ZBI-12) scale (12-items). The scale score is calculated by summing each item to produce a total score between 0 and 24, with higher scores indicating worse outcome. | 12 months |
| Caregiver Self-rated General Health Score | Patient-Reported Outcomes Measurement Information System (PROMIS) measure SF-1 self-rated general health single item. The scale score ranges from 1 to 5, with higher scores indicating worse outcome. | 12 months |
| UCLA Loneliness Scale Score | UCLA loneliness scale (3-items). The scale score is calculated by summing each item to produce a total score between 3 and 9, with higher scores indicating worse outcome. | 12 months |
| Lubben Social Isolation Scale Score | Lubben Social isolation scale (6-items). The scale score is calculated by summing each item to produce a total score between 0 and 30, with lower scores indicating worse outcome. | 12 months |
| Caregiver Health Care Utilization | 3-items measuring days of overnight hospitalizations, nursing home or other long-term care facility use, and hospital emergency room visits from the Health and Retirement Study, modified time frame from self-report for past 12 months to self-report for past 6 months; scored as single items; with higher scores indicating worse outcome. Scores range from 0-180. | 12 months |
| Person With Dementia General Health Score as Reported by Caregiver | Patient-Reported Outcomes Measurement Information System (PROMIS) measure SF-1 caregiver-reported general health single item. The scale score ranges from 1 to 5, with higher scores indicating worse outcome. | 12 months |
| 36057375 | Derived | Santoyo-Olsson J, Lorig K, Romo EM, Luzanilla M, Ramirez GA, Cheng J, Chesla C, Covinsky KE, Karliner L, Thompson DG, Fahrenwald N, Yank V. Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia. Contemp Clin Trials. 2022 Oct;121:106903. doi: 10.1016/j.cct.2022.106903. Epub 2022 Aug 31. |
Attention control group participants received two 15-30 minutes phone calls and a handbook on dementia and caregiver resources. |
| Group Delivery Begins = Modified Intention to Treat Population |
|
| 1.5 Month Follow-up |
|
| 6-month Follow-up |
|
| COMPLETED |
|
| NOT COMPLETED |
|
|
Not provided
| ID | Title | Description |
|---|---|---|
| BG000 | Building Better Caregivers Workshop Group | The Building Better Caregivers Workshop is a 6-week online small group workshop. Participants received self-management and caregiving skills-building training and social support. They also received a workbook to keep. |
| BG001 | Attention Control Group | Attention control group participants received two 15-30 minutes phone calls and a handbook on dementia and caregiver resources. |
| BG002 | Total | Total of all reporting groups |
| Units | Counts |
|---|---|
| Participants |
|
| Title | Description | Population Description | Parameter Type | Dispersion Type | Unit of Measure | Calculate Percentage | Denominator Units Selected | Denominators | Classes | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Age, Continuous | Two participants in each group did not answer the age question. | Mean | Standard Deviation | years |
| ||||||||||||||
| Sex/Gender, Customized | Count of Participants | Participants |
| ||||||||||||||||
| Race/Ethnicity, Customized | Self-identified race and ethnicity. | Count of Participants | Participants |
| |||||||||||||||
| Region of Enrollment | Number | participants |
| ||||||||||||||||
| PHQ-8 | Depressive symptoms were measured using the 8-item Patient Health Questionnaire (PHQ-8), with score range 0-24 (higher score indicates worse depressive symptoms). | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
| |||||||||||||
| Stress | Stress was measured using the single-item visual numeric stress scale, with score range 0-10 (higher score indicates worse stress). | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
| |||||||||||||
| Caregiver Self-Efficacy | Caregiving self-efficacy was measured with the Caregiver Self-Efficacy scale (8 items), with score range, 1-10 (higher score indicates greater self-efficacy). The scale was not administered at follow-up assessments if caregivers reported that they were not providing caregiving at that time. | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
| |||||||||||||
| Zarit Care Burden | Care burden was measured with the Zarit Burden Interview (12 items), with score range, 0-24 (higher score indicates greater burden). The scale was not administered at follow-up assessments if caregivers reported that they were not providing caregiving at that time. | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
| |||||||||||||
| Self-Rated General Health | Poor self-rated health was measured using the single item Short Form Survey (SF-1) scale, with score range, 1-5 (higher score indicates worse health). | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
| |||||||||||||
| Loneliness | Loneliness was measured with the UCLA loneliness scale (3 items), with score range, 3-9 (higher score indicates greater loneliness). | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
| |||||||||||||
| Social Isolation | Social network was measured with the Lubben social network scale (6 items), with score range, 0-30 (higher score indicates greater network). | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
| |||||||||||||
| Healthcare Utilization | Healthcare utilization days was measured as emergency room and hospitalization days of use in the prior six months as a count, with range 0-180 days (higher count indicates more days). | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | days |
| |||||||||||||
| Person with Dementia General Health (caregiver reported) | Poor self-rated health was measured using the single item Short Form Survey (SF-1) scale, with score range, 1-5 (higher score indicates worse health). | Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants. | Mean | Standard Deviation | units on a scale |
|
| Type | Title | Description | Population Description | Reporting Status | Anticipated Posting Date | Parameter Type | Dispersion Type | Unit of Measure | Calculate Percentage | Time Frame | Units Analyzed | Denominator Units Selected | Arm/Group Information | Denominators | Classes | Analyses | |||||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Primary | Personal Health Questionnaire Depression (PHQ-8) Scale Score | Personal Health Questionnaire Depression (PHQ-8) scale. The scale score is calculated by summing each item to produce a total score between 0 and 24, with higher scores indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 12 months |
|
|
| |||||||||||||||||||||||||||||
| Primary | Visual Numeric Stress Scale | A visual numeric stress scale. The scale score ranges from 0 to 10, with higher score indicating worse outcome. | Posted | Mean | Standard Deviation | score on a scale | 12 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Personal Health Questionnaire Depression (PHQ-8) Scale Score | Personal Health Questionnaire Depression (PHQ-8) scale. The scale score is calculated by summing each item to produce a total score between 0 and 24, with higher scores indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 6 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Visual Numeric Stress Scale Score | A visual numeric stress scale. The scale score ranges from 0 to 10, with higher score indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 6 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Short Caregiver Self-Efficacy Scale Score | Short Caregiver Self-Efficacy scale (8-items). The scale scores is calculated by taking the mean of the items to produce a total score between 1 and 10, with higher scores indicating better outcome. | Posted | Mean | Standard Deviation | units on a scale | 12 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Zarit Burden Interview-12 (ZBI-12) Scale Score | Short form of the Zarit Burden Interview-12 (ZBI-12) scale (12-items). The scale score is calculated by summing each item to produce a total score between 0 and 24, with higher scores indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 12 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Caregiver Self-rated General Health Score | Patient-Reported Outcomes Measurement Information System (PROMIS) measure SF-1 self-rated general health single item. The scale score ranges from 1 to 5, with higher scores indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 12 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | UCLA Loneliness Scale Score | UCLA loneliness scale (3-items). The scale score is calculated by summing each item to produce a total score between 3 and 9, with higher scores indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 12 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Lubben Social Isolation Scale Score | Lubben Social isolation scale (6-items). The scale score is calculated by summing each item to produce a total score between 0 and 30, with lower scores indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 12 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Caregiver Health Care Utilization | 3-items measuring days of overnight hospitalizations, nursing home or other long-term care facility use, and hospital emergency room visits from the Health and Retirement Study, modified time frame from self-report for past 12 months to self-report for past 6 months; scored as single items; with higher scores indicating worse outcome. Scores range from 0-180. | Posted | Mean | Standard Deviation | days | 12 months |
|
| ||||||||||||||||||||||||||||||
| Secondary | Person With Dementia General Health Score as Reported by Caregiver | Patient-Reported Outcomes Measurement Information System (PROMIS) measure SF-1 caregiver-reported general health single item. The scale score ranges from 1 to 5, with higher scores indicating worse outcome. | Posted | Mean | Standard Deviation | units on a scale | 12 months |
|
|
1 year
Not provided
Not provided
| ID | Title | Description | Deaths (Affected) | Deaths (At Risk) | Serious Events (Affected) | Serious Events (At Risk) | Other Events (Affected) | Other Events (At Risk) |
|---|---|---|---|---|---|---|---|---|
| EG000 | Building Better Caregivers Workshop Group | The Building Better Caregivers Workshop is a 6-week online small group workshop. Participants received self-management and caregiving skills-building training and social support. They also received a workbook to keep. | 0 | 304 | 0 | 304 | 0 | 304 |
| EG001 | Attention Control Group | Attention control group participants received two 15-30 minutes phone calls and a handbook on dementia and caregiver resources. | 1 | 114 | 1 | 114 | 0 | 114 |
| Term | Organ System | Source Vocabulary | Assessment Type | Notes | Statistical Information |
|---|---|---|---|---|---|
| natural disaster | General disorders | Non-systematic Assessment | One death unrelated to the study occurred (i.e., an "act of God" event). During a state of emergency caused by massive rainstorms and flooding, a tree fell onto the roof of the participant's house and crushed her when she was in bed asleep. |
|
Not provided
Randomization occurred 2 weeks before group delivery to allow for mailing of books and scheduling calls. During this run-in period 9 participants were administratively dropped: 4 in intervention group, due to death of person with dementia (2), being a duplicate (1), and inability to verify identity (1); 5 in control group, due to death of their person (3), death of caregiver in natural disaster (1), and being paid caregiver (1). Thus, the modified ITT analysis included 409 participants.
Not provided
Not provided
| Title | Organization | Phone | Extension | |
|---|---|---|---|---|
| Dr. Veronica Yank | UCSF | 415-476-9654 | veronica.yank@ucsf.edu |
| Jun 27, 2025 |
| Prot_SAP_000.pdf |
| Prot | Yes | No | No | Study Protocol: Revised protocol (randomization plan subsection) | Aug 11, 2019 | Jun 27, 2025 | Prot_001.pdf |
| ICF | No | No | Yes | Informed Consent Form | Mar 8, 2023 | Jun 27, 2025 | ICF_002.pdf |
| ID | Term |
|---|---|
| D003863 | Depression |
| D013315 | Stress, Psychological |
| D012934 | Social Isolation |
| D010342 | Patient Acceptance of Health Care |
| D003704 | Dementia |
| D000544 | Alzheimer Disease |
| D015140 | Dementia, Vascular |
| D020961 | Lewy Body Disease |
| D000093902 | Mixed Dementias |
| D015526 | AIDS Dementia Complex |
| D020774 | Pick Disease of the Brain |
| D015161 | Dementia, Multi-Infarct |
| ID | Term |
|---|---|
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
| D012919 | Social Behavior |
| D000074822 | Treatment Adherence and Compliance |
| D015438 | Health Behavior |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
| D001523 | Mental Disorders |
| D024801 | Tauopathies |
| D019636 | Neurodegenerative Diseases |
| D002561 | Cerebrovascular Disorders |
| D002537 | Intracranial Arteriosclerosis |
| D020765 | Intracranial Arterial Diseases |
| D056784 | Leukoencephalopathies |
| D001161 | Arteriosclerosis |
| D001157 | Arterial Occlusive Diseases |
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
| D020734 | Parkinsonian Disorders |
| D001480 | Basal Ganglia Diseases |
| D009069 | Movement Disorders |
| D000080874 | Synucleinopathies |
| D015658 | HIV Infections |
| D000086982 | Blood-Borne Infections |
| D003141 | Communicable Diseases |
| D007239 | Infections |
| D015229 | Sexually Transmitted Diseases, Viral |
| D012749 | Sexually Transmitted Diseases |
| D016180 | Lentivirus Infections |
| D012192 | Retroviridae Infections |
| D012327 | RNA Virus Infections |
| D014777 | Virus Diseases |
| D000091662 | Genital Diseases |
| D000091642 | Urogenital Diseases |
| D007153 | Immunologic Deficiency Syndromes |
| D007154 | Immune System Diseases |
| D057180 | Frontotemporal Dementia |
| D057174 | Frontotemporal Lobar Degeneration |
| D002544 | Cerebral Infarction |
| D020520 | Brain Infarction |
| D002545 | Brain Ischemia |
| D020521 | Stroke |
| D007238 | Infarction |
| D007511 | Ischemia |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
| D009336 | Necrosis |
Not provided
Not provided
|
|
| Black/African American |
|
|
| Hispanic/Latino |
|
|
| American Indian/Native American/Alaska Native |
|
|
| Asian/Asian American |
|
|
| Native Hawaiian/Other Pacific Islander |
|
|
| More than one race |
|
|
| Other |
|
|
| Unknown or not reported |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|