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| ID | Type | Description | Link |
|---|---|---|---|
| PYO. SBF.1904.19.006 | Other Grant/Funding Number | Ondokuz Mayıs University |
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The aim of this study is to determine the effects of nursing care provided based on the Watson's Theory of Human Caring to the relatives of palliative care patients on caregivers' spiritual well-being and hope. This research was conducted with 60 patient relatives (intervention group: 30, control group: 30) taking care of their patient in palliative care unit.
Every year, millions of patients as well as millions of patients are primarily involved in the palliative care process. It is emphasized that from the very start of palliative care process until grievance stage, patient relatives require a myriad of physical, psychological, social and spiritual needs. It has been widely reported that among relatives of palliative care patients, there is a high incidence of mental distress, depression, anxiety, sleep disturbance, fear and despair. The maintain of hope and spiritual well-being are important in dealing with this difficult process. Accordingly, nursing care is important, which supports the hope and spiritual well-being of patients' relatives. Nursing care that supports hope and focuses on spiritual dimensions is important in Watson's Human Care Theory.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Control group | No Intervention | Routine nursing care | |
| Intervention group | Experimental | Nursing care based on the Theory of Human Caring |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Nursing care based on the Theory of Human Caring | Other | Planned nursing care based on 10 caritas processes of Theory of Human Caring. |
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| Measure | Description | Time Frame |
|---|---|---|
| Hopeless level of patient relatives | Data were collected via Beck Hopelessness Scale. Maximum score to obtain from the scale varies in between 0-20. Higher scores obtained indicate that there is a high level of hopelessness in an individual. | 1. week |
| Spiritual well-being level of patient relatives | Data were collected via Spiritual Well-Being Scale. Maximum score to obtain from the scale varies between 29-145. Higher score indicates stronger spiritual well-being. | 1. week |
| Measure | Description | Time Frame |
|---|---|---|
| Hopeless level of patient relatives (Change in level of hopeless after 4 weeks) | Data were collected via Beck Hopelessness Scale. Maximum score to obtain from the scale varies in between 0-20. Higher scores obtained indicate that there is a high level of hopelessness in an individual. | 4 weeks |
| Spiritual well-being level of patient relatives (Change in level of spiritual well-being after 4 weeks) |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Aslı Kurtgöz, PhD | Amasya University | Principal Investigator |
| Zeliha Koc, PhD | Ondokuz Mayıs University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Ondokuz Mayıs University | Samsun | 55312 | Turkey (Türkiye) |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 24678941 | Background | De Korte-Verhoef MC, Pasman HR, Schweitzer BP, Francke AL, Onwuteaka-Philipsen BD, Deliens L. Burden for family carers at the end of life; a mixed-method study of the perspectives of family carers and GPs. BMC Palliat Care. 2014 Mar 31;13(1):16. doi: 10.1186/1472-684X-13-16. | |
| 24811216 | Background | Gotze H, Brahler E, Gansera L, Polze N, Kohler N. Psychological distress and quality of life of palliative cancer patients and their caring relatives during home care. Support Care Cancer. 2014 Oct;22(10):2775-82. doi: 10.1007/s00520-014-2257-5. Epub 2014 May 9. |
| Label | URL |
|---|---|
| WHO (2019). Palliative care | View source |
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In this study, there are two groups as intervention group and control group. Investigator, administered not any application to control group. Nursing care which based on the Theory of Human Caring was given to intervention group for 4 weeks.
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Due to the nature of the research, it was not possible to blind the participants to group assignment. Additionally, due to the study being conducted for a doctoral thesis, data collection (pre and posttest), interviews, interventions and evaluation of data carried out by the same researcher who was not blinded.
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Data were collected via Spiritual Well-Being Scale. Maximum score to obtain from the scale varies between 29-145. Higher score indicates stronger spiritual well-being. |
| 4 weeks |
| 28486962 | Background | Ullrich A, Ascherfeld L, Marx G, Bokemeyer C, Bergelt C, Oechsle K. Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients. BMC Palliat Care. 2017 May 10;16(1):31. doi: 10.1186/s12904-017-0206-z. |
| 31739802 | Background | Oechsle K, Ullrich A, Marx G, Benze G, Heine J, Dickel LM, Zhang Y, Wowretzko F, Wendt KN, Nauck F, Bokemeyer C, Bergelt C. Psychological burden in family caregivers of patients with advanced cancer at initiation of specialist inpatient palliative care. BMC Palliat Care. 2019 Nov 18;18(1):102. doi: 10.1186/s12904-019-0469-7. |
| Canadian Cancer Research Alliance (2017). Pan-canadian framework for palliative and end-of life care research | View source |
| Watson, J. (2010). Core concepts of Jean Watson's Theory of human caring/caring science. | View source |