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| Name | Class |
|---|---|
| Cambridge University Hospitals NHS Foundation Trust | OTHER |
| Cambridgeshire and Peterborough NHS Foundation Trust | OTHER |
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Sound and Vision: A collaboration between service-users, artists and the public to explore the lived experience of hallucinations
Sound and Vision will pair local artists with patients who have had hallucinations to create art pieces that represent their hallucinatory experiences. Patients with diagnoses of schizophrenia and Parkinson's disease will be invited to take part in participating National Health Service (NHS) clinics, to capture and compare a wide range of hallucinatory experiences. Patients will meet with artists on several occasions who will then develop the piece, which may be a painting, drawing, or other media that the artist and service-user jointly select.
Completed artworks will be the centrepiece for an exhibition at United Kingdom (UK) science festivals and a digital (on-line) presentation. The exhibition will be accompanied by researchers explaining the brain science of hallucinations, recordings of patients and artists describing their experience with hallucinations and the process of developing the artworks, booklets cataloguing the exhibition, and art materials available for artistic expression of their own experiences. A digital compendium of the artworks and supporting material will be publicly available alongside the opportunity to complete an online survey exploring the themes of the artworks and collecting information on personal experiences. The objectives are to engage the public in an appreciation of the experience of hallucinations and their prevalence across many common mental health and neurodegenerative disorders, as well as an experience many people will share without ever being diagnosed. The exhibition will also encourage the public to share their own experiences through the online questionnaires creating a platform to begin to improve the understanding of the diversity of hallucination-like experiences in the general population.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| General population | The general public attending exhibitions of the artworks who wish to complete the on-line questionnaire and feedback |
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| Measure | Description | Time Frame |
|---|---|---|
| University of Miami Parkinson's disease Hallucinations Questionnaire (UM-PDHQ) | The University of Miami Parkinson's disease Hallucinations Questionnaire (UM-PDHQ) is composed of 6 quantitative and 14 qualitative items to define the key characteristics of hallucinations in Parkinson's Disease. The first 6 questions score the severity of hallucinations with a minimum score is zero and a maximum of 14, with greater score indicating greater severity. The remaining 14 questions have qualitative answers. | Through study completion, an average of 1 year |
| The Multi-Modality Unusual Sensory Experiences Questionnaire (MUSEQ) | The Multi-Modality Unusual Sensory Experiences Questionnaire (MUSEQ) is a 43-item self-report measure with each item rated on a five-point Likert scale, and assesses unusual sensory experiences in six modalities: auditory, visual, olfactory, gustatory, bodily sensations, and sensed presence. The minimum score is zero, the maximum score is 173 with a greater score indicating a higher frequency of unusual sensory experiences. | Through study completion, an average of 1 year |
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No particular inclusion or exclusion criteria
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The general publication attending an exhibition of artworks depicting the experience of hallucinations.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| John Suckling | Contact | 01223 336063 | js369@cam.ac.uk | |
| Colleen Rollins | Contact | 01223 336585 | cper2@cam.ac.uk |
| Name | Affiliation | Role |
|---|---|---|
| John Suckling | University of Cambridge | Principal Investigator |
| Emilio Fernandez-Egea | Cambridgeshire and Peterborough NHS Foundation Trust | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Cambridge and Peterborough NHS Trust | Recruiting | Cambridge | Cambs | United Kingdom |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 31193632 | Background | Rollins CPE, Garrison JR, Simons JS, Rowe JB, O'Callaghan C, Murray GK, Suckling J. Meta-analytic Evidence for the Plurality of Mechanisms in Transdiagnostic Structural MRI Studies of Hallucination Status. EClinicalMedicine. 2019 Feb 21;8:57-71. doi: 10.1016/j.eclinm.2019.01.012. eCollection 2019 Feb. |
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| ID | Term |
|---|---|
| D012559 | Schizophrenia |
| D010300 | Parkinson Disease |
| D006212 | Hallucinations |
| ID | Term |
|---|---|
| D019967 | Schizophrenia Spectrum and Other Psychotic Disorders |
| D001523 | Mental Disorders |
| D020734 | Parkinsonian Disorders |
| D001480 | Basal Ganglia Diseases |
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| James Rowe |
| Cambridge University Hospitals NHS Foundation Trust |
| Principal Investigator |
| Cambridge University Hospital | Recruiting | Cambridge | Cambs | United Kingdom |
|
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D009069 | Movement Disorders |
| D000080874 | Synucleinopathies |
| D019636 | Neurodegenerative Diseases |
| D010468 | Perceptual Disorders |
| D019954 | Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |