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The aim is to describe the characteristics of children with cerebral palsy in Denmark. Furthermore, we want to focus on status of the children's hips.
Introduction: In 1994, a surveillance programme for children with Cerebral Palsy called the Cerebral Palsy Follow-Up Programme (CPUP) was established in Sweden with the primary purpose of preventing hip dislocation.
Hip dislocation is a serious complication to cerebral palsy, which is very painful for the child and requires complex hip surgery. Research studies have documented the effects of the follow-up program on the prevention of dislocation of the hip in children with CP in Sweden.
In 2003, the region of Southern Denmark introduced the Swedish follow-up program with the Danish name Cerebral Palsy Follow-up Program (CPOP). CPOP has since become a national follow-up program as well as a national clinical quality database in Denmark that includes children with CP aged 0-15 years and children with cerebral palsy-like symptoms aged 0-5 (5). The objective of the CPOP is to prevent complications associated with CP such as hip dislocation, scoliosis and contractures of muscles and joints.
It is now ten years since the first children were included in CPOP. There is no report describing the characteristics of children with cerebral palsy in Denmark and the status of the primary aim of the programme, hip status.
This study includes children diagnosed with CP born 2003 - 2020 and registered in the Danish Cerebral Palsy Follow-up Program.
Variables that will be analyzed are:
Data will be obtained from the national clinical quality database the Danish Cerebral Palsy Follow-up Program and the Danish National Patient Register.
Variables will be summarize by counts, proportions and/or percentages using graphs and tables. Furthermore, the median and interquartile range will be specified when meaningful. Additionally, we will do non-parametric statistics (significance tests).
Currently, we do not have information about the extent of missing data for the different variables. When we have obtained the data, we will determine whether we have sufficient completeness for these variables to be included and reported in the statistical significance tests.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Children with Cerebral Palsy in Denmark | Children diagnosed with cerebral palsy born 2003 - 2020 and registered in the Danish Cerebral Palsy Follow-up Program. |
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| Measure | Description | Time Frame |
|---|---|---|
| Characteristics for children with CP in Denmark | Age, Gross Motor Function Classification Level (I-V), cerebral palsy subtype, acetabular index, standing function, Functional Mobility Scale, Gross Motor Function Measure, range of motion (hip abduction, hip extension, hip external rotation, hamstrings length), Modified Ashworth Scale (hip adduction, hip flexion, knee extension), hip displacement ( Migration Percentage) and hip surgery. | Through study completion, on average 3 years |
| Measure | Description | Time Frame |
|---|---|---|
| Association between Gross Motor Function Classification System and Migrations Percentage (MP) | Gross Motor Function Classification System and Migration Percentage | Through study completion, on average 3 years |
| Association between cerebral palsy subtype and Migrations Percentage |
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Inclusion Criteria:
Exclusion Criteria:
- Cerebral palsy diagnosis was not confirmed.
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Children registered in the Danish Cerebral Palsy Follow-up Program.
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| Name | Affiliation | Role |
|---|---|---|
| Mette Røn Kristensen, PT, MSc | Fysio- og Ergoterapien, afsnit 234-236, Hvidovre Hospital, | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Fysio- og Ergoterapien, afsnit 234-236, Hvidovre hospital | Hvidovre | Capital Region | 2650 | Denmark |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 27822084 | Background | Rasmussen HM, Nordbye-Nielsen K, Moller-Madsen B, Johansen M, Ellitsgaard N, Pedersen CR, Rackauskaite G, Engberg H, Pedersen NW. The Danish Cerebral Palsy Follow-up Program. Clin Epidemiol. 2016 Oct 25;8:457-460. doi: 10.2147/CLEP.S99474. eCollection 2016. | |
| 25371472 | Background | Hagglund G, Alriksson-Schmidt A, Lauge-Pedersen H, Rodby-Bousquet E, Wagner P, Westbom L. Prevention of dislocation of the hip in children with cerebral palsy: 20-year results of a population-based prevention programme. Bone Joint J. 2014 Nov;96-B(11):1546-52. doi: 10.1302/0301-620X.96B11.34385. |
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| ID | Term |
|---|---|
| D002547 | Cerebral Palsy |
| D006617 | Hip Dislocation |
| ID | Term |
|---|---|
| D001925 | Brain Damage, Chronic |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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cerebral palsy subtype and Migrations Percentage |
| Through study completion, on average 3 years |
| Association between standing position and Migrations Percentage | Variables for standing position and Migrations Percentage | Through study completion, on average 3 years |
| Association between range of motion and Migrations Percentage | range of motion (hip abduction, hip extension, hip external rotation, hamstrings length) and Migrations Percentage | Through study completion, on average 3 years |
| D004204 | Joint Dislocations |
| D007592 | Joint Diseases |
| D009140 | Musculoskeletal Diseases |
| D014947 | Wounds and Injuries |
| D025981 | Hip Injuries |