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| Name | Class |
|---|---|
| University of Florence | OTHER |
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Present project aims to investigate memories related to a cancer communication diagnosis in pediatric oncology. It evaluates possible common elements and specificity between family and healthcare staff.
Lots of scientific evidences have shown that autobiographical episodes' narrative has a beneficial effect on the elaboration of memories. Indeed, narrating is a way to order thoughts and moods, which are connected to particular episodes of one's life, in order to rework and relive them. Since the diagnosis, a relationship and an open and sincere dialogue between the various parts of the pediatric triangle can promote a process of adaptation to the experience of illness and an integrated biopsychosocial healing. The first aim of this study is to explore and analyze autobiographical memories of pediatric patients, parents and healthcare staff. Also, it aims to investigate possible common and discordant element between deposition.
Phases of the present study:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients | Pediatric patients from 12 to 17 with cancer diagnosis only taken by Meyer Children's Hospital prior consent. Knowledge of fluent Italian language is required |
| |
| Parents | Parents of pediatric patients prior consent. Knowledge of fluent Italian language is required |
| |
| Medical Staff | Medical staff including doctor, psychologist and nurse |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Communication memory | Other | All groups will undergo audio-recorder interviews. Only adults will complete a self-report questionnaire on phenomenological aspects of autobiographical memories. |
| Measure | Description | Time Frame |
|---|---|---|
| Phenomenological characteristics of autobiographical memory | Self report questionnaire "Assessment of the Phenomenology of Autobiographical Memory - APAM" | One day after diagnosis |
| Emotional characteristics of autobiographical memory | linguistic analysis by Linguistic Inquiry Word Count - LIWC; cluster analysis by T-Lab; Content analysis; coherence and narrative structure by High Point Anaysis. | One day after diagnosis |
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Inclusion criteria for pediatric patients:
Exclusion criteria for pediatric patients:
Inclusion criteria for parents:
- Italian speaking and signature informed consent.
Exclusion criteria for parents:
- cognitive disability
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patients with cancer diagnosis; their parents and healthcare staff
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| Name | Affiliation | Role |
|---|---|---|
| Chiara Fioretti, PhD | Laboratorio di Metodi e Tecniche di Analisi delle Esperienze di Malattia Dipartimento di Scienze della Formazione e Psicologia, Università degli Studi di Firenze | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Meyer Children's Hospital | Florence | Firenze | 50139 | Italy |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 10260456 | Background | Bury M. Chronic illness as biographical disruption. Sociol Health Illn. 1982 Jul;4(2):167-82. doi: 10.1111/1467-9566.ep11339939. | |
| Background | Fioretti, C., & Smorti, A. (2015). How emotional content of memories changes in narrative. Narrative Inquire, 25(1), 37-56. | ||
| 27271542 |
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
| D003142 | Communication |
| D004194 | Disease |
| ID | Term |
|---|---|
| D001519 | Behavior |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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| Background |
| Fioretti C, Smorti A. Narrating positive versus negative memories of illness: does narrating influence the emotional tone of memories? Eur J Cancer Care (Engl). 2017 May;26(3). doi: 10.1111/ecc.12524. Epub 2016 Jun 8. |
| 23640242 | Background | Giffard B, Viard A, Dayan J, Morel N, Joly F, Eustache F. Autobiographical memory, self, and stress-related psychiatric disorders: which implications in cancer patients? Neuropsychol Rev. 2013 Jun;23(2):157-68. doi: 10.1007/s11065-013-9233-6. Epub 2013 May 3. |
| 10989622 | Background | Habermas T, Bluck S. Getting a life: the emergence of the life story in adolescence. Psychol Bull. 2000 Sep;126(5):748-69. doi: 10.1037/0033-2909.126.5.748. |
| Background | Jankovic, M. & Puricelli, E. (2008). La comunicazione della diagnosi al bambino. In S. M. G. Adamo (A cura di), La cura della relazione in oncologia pediatrica. Milano: Raffaello Cortina. |
| Background | Lancia, F. (2004). Strumenti per l'analisi dei testi: introduzione all'uso di T-Lab. Milano: Franco Angeli |
| 8664044 | Background | Last BF, van Veldhuizen AM. Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8-16 years. Eur J Cancer. 1996 Feb;32A(2):290-4. doi: 10.1016/0959-8049(95)00576-5. |
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| Background | McAdams, D. P. (2008). Personal narratives and the life story. In R. John, W. Robins & L. Pervin (Eds.), Handbook of personality: Theory and Research (3rd edn, pp. 241-261). New York: Guilford Press. |
| 15518671 | Background | Nilsson-Ihrfelt E, Fjallskog ML, Liss A, Jakobsson O, Blomqvist C, Andersson G. Autobiographical memories in patients treated for breast cancer. J Psychosom Res. 2004 Oct;57(4):363-6. doi: 10.1016/j.jpsychores.2004.01.009. |
| Background | Papini, M., Tringali, D., & Lauro-Grotto, R. (2011). La nostra era una vita normale. Ancona: Sorbello Editore. |
| 18623217 | Background | Parker TM, Johnston DL. Parental perceptions of being told their child has cancer. Pediatr Blood Cancer. 2008 Oct;51(4):531-4. doi: 10.1002/pbc.21667. |
| Background | Pennebaker, J., Fracis, M.E., & Booth, R.J. (2001). Linquistic Inquiry Word Count: LIWC 2001. Mahway: Lawrence Erlbaum Associates. |
| Background | Smorti, A. (2007). Narrazioni. Cultura, memorie, formazione del sé. Firenze: Giunti. |
| Background | Smorti, A. & Donzelli, G.P. (2015). La medicina narrativa in pediatria. Come le storie ci aiutano a capire la malattia. Firenze: SEID. |
| 15296044 | Background | Sobo EJ. Good communication in pediatric cancer care: a culturally-informed research agenda. J Pediatr Oncol Nurs. 2004 May-Jun;21(3):150-4. doi: 10.1177/1043454204264408. |
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| Background | Vannucci, M., Marchetti, I., Manili, A., Chiorri, C. (2010). "Come" ricordiamo il passato: Un nuovo strumento sulla fenomenologia della memoria autobiografica. Congresso Nazionale AIP; Sezione di Psicologia Sperimentale, Bologna, 2-4 Settembre 2010. |
| 32246729 | Background | Vannucci M, Chiorri C, Marchetti I. Shaping our personal past: Assessing the phenomenology of autobiographical memory and its association with object and spatial imagery. Scand J Psychol. 2020 Oct;61(5):599-606. doi: 10.1111/sjop.12639. Epub 2020 Apr 4. |