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Genetic counseling and testing for hereditary breast cancer may reveal that you, and possibly your blood relatives, are at increased risk for the disease across the lifespan. This includes biological children, both male and female. We do not yet know the best ways to educate mothers who have a risk gene (are BRCA+) about whether, when, and how to share genetic information with their children or manage their thoughts and feelings. The purpose of this study is to help mothers make more informed choices about talking with children about hereditary breast cancer, provide them with age-and gender-appropriate information and emotional support, and improve their psychological well-being.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Usual Care | Active Comparator |
| |
| Enhanced Care | Experimental |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Education and counseling | Behavioral | Education includes a workbook, counseling includes peer support. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Communication | Parent-child and family communication of hereditary cancer risk. | 1- and 6-months post-treatment |
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Inclusion Criteria:
Exclusion Criteria:
- Does not meet inclusion criteria.
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Kenneth Tercyak, PhD | Contact | 202-687-0802 | familycom@georgetown.edu |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| MedStar Georgetown University Hospital | Recruiting | Washington D.C. | District of Columbia | 20007 | United States |
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| ID | Term |
|---|---|
| D001943 | Breast Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D001941 | Breast Diseases |
| D012871 | Skin Diseases |
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| ID | Term |
|---|---|
| D004522 | Educational Status |
| D003376 | Counseling |
| ID | Term |
|---|---|
| D012959 | Socioeconomic Factors |
| D011154 | Population Characteristics |
| D008605 | Mental Health Services |
| D004191 | Behavioral Disciplines and Activities |
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| Education | Behavioral | Education includes a workbook. |
|
| D017437 |
| Skin and Connective Tissue Diseases |
| D003153 | Community Health Services |
| D006296 | Health Services |
| D005159 | Health Care Facilities Workforce and Services |