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Business Reason
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Non-interventional, prospective, multicenter, natural history study of patients with mitochondrial neurogastrointestinal encephalomyopathy (MNGIE)
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| MNGIE Patients | Patients with mitochondrial neurogastrointestinal encephalomyopathy |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Non-interventional | Other | Non-interventional natural history study |
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| Measure | Description | Time Frame |
|---|---|---|
| MNGIE Clinical Course | To evaluate the clinical course of MNGIE patients | 5 years |
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Inclusion Criteria:
Exclusion Criteria:
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Male or female MNGIE patients greater than 5 years of age
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| Name | Affiliation | Role |
|---|---|---|
| Michio Hirano, MD | Columbia University | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Children's Hospital Colorado | Aurora | Colorado | 80045 | United States | ||
| Columbia University |
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| New York |
| New York |
| 10032 |
| United States |
| Baylor St Luke's Medical Center and Texas Children's Hospital at Baylor College of Medicine | Houston | Texas | 77030 | United States |
| Ege University Medical Faculty; Department of Pediatrics | Bornova | İzmir | Turkey (Türkiye) |
| Gazi Üniversitesi Tıp Fakültesi | Ankara | 06500 | Turkey (Türkiye) |