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| ID | Type | Description | Link |
|---|---|---|---|
| No NIH funding | Other Identifier | 10.11.23 |
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The Yale HF Registry is a live EHR based registry that allows for retrospective and real-time monitoring of Heart Failure case across the Yale New Haven Health System.
Electronic Health Records based registries can be an important resource for precision medicine delivery by understanding the population burden of chronic diseases such as heart failure. These registries can allow for a deeper understanding of gaps in guideline recommended therapies among patients who are under the purview of large, integrated Therefore, we have created a live registry within the integrated Yale New Haven Health System-the Yale Heart Failure Registry-that includes all patients with a diagnosis of HF and has detailed information about demographics, comorbidities, laboratories, imaging, medications, and clinical outcomes (including hospital readmissions). The registry is updated daily and can be queried for clinically relevant questions aimed at quality improvement.
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| Measure | Description | Time Frame |
|---|---|---|
| Number of participants hospitalized for heart failure | Heart Failure hospitalizations | 10 years |
| Doses of therapies that comprise guideline directed medical therapy | Appropriate use of guideline recommended therapies. This will include doses of beta blockers, ACE inhibitors, ARBs, ARNI, SGLT2i, ICD use. | 10 years |
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Inclusion Criteria:
Exclusion Criteria:
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Retrospective and Real-Time Monitoring of Heart Failure Across the Yale New Haven Health System Via a Live Registry
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Tariq Ahmad, MD MPH | Contact | (203) 843-1667 | Tariq.ahmad@yale.edu | |
| Nihar Desai, MD MPH | Contact | 203-767-6399 |
| Name | Affiliation | Role |
|---|---|---|
| Nihar Desai, MD MPH | Yale University | Study Director |
| Tariq Ahmad, MD MPH | Yale University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Yale New Haven Health System | Recruiting | New Haven | Connecticut | 06510 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 30844480 | Result | Greene SJ, Fonarow GC, DeVore AD, Sharma PP, Vaduganathan M, Albert NM, Duffy CI, Hill CL, McCague K, Patterson JH, Spertus JA, Thomas L, Williams FB, Hernandez AF, Butler J. Titration of Medical Therapy for Heart Failure With Reduced Ejection Fraction. J Am Coll Cardiol. 2019 May 21;73(19):2365-2383. doi: 10.1016/j.jacc.2019.02.015. Epub 2019 Mar 4. | |
| 35272506 |
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Data is on patients seen at Yale New Haven Health system and will be used for quality improvement.
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| ID | Term |
|---|---|
| D006333 | Heart Failure |
| ID | Term |
|---|---|
| D006331 | Heart Diseases |
| D002318 | Cardiovascular Diseases |
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| Ahmad T, Desai NR. Reimagining Evidence Generation for Heart Failure and the Role of Integrated Health Care Systems. Circ Cardiovasc Qual Outcomes. 2022 Apr;15(4):e008292. doi: 10.1161/CIRCOUTCOMES.121.008292. Epub 2022 Mar 11. No abstract available. |