A National Prospective Cohort for Pregnancies in Patients With Rare Vascular Anomalies: COGRare5 Study
A National Prospective Cohort for Pregnancies in Patients With Rare Vascular Anomalies: COGRare5 Study
There are no prospective studies of pregnancies for the diseases studied here in (Heredity Hemorrhagic Telangiectasia, Marfan syndrome or related, primary lower limb lymphedema, superficial arteriovenous malformations, and cerebro-spinal arteriovenous malformations) although complications of these can present life-threatening health problems for the mother and her baby.
The purpose of this National prospective study is to obtain greater insight into obstetrical complications associated with rare maternal vascular genetic disorders in order to improve prevention and to reduce risk of death.
In this context, experts and patient associations consider that there is a need to make real progress in the formulation of recommendations based on scientific data.
Inclusion Criteria:
Exclusion Criteria:
sophie.dupuis-girod@chu-lyon.fr04 27 85 65 25 ext. +33
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Angers, 49933, France
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Bordeaux, 33075, France
Boulogne-Billancourt, 92104, France
Bron, 69677, France
Bron, 69677, France
Bron, 69677, France
Clermont-Ferrand, 63000, France
Lille, 59037, France
Montpellier, 34295, France
Nancy, 54035, France
Nantes, 44093, France
Paris, 75019, France
Rouen, 76000, France
Saint-Etienne, 42055, France
Saint-Herblain, 44800, France
Strasbourg, 67091, France
Toulouse, 31059, France
Tours, 37044, France
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