Communication Training for Caregivers In Advanced Care Planning

Communication Training for Caregivers to Promote Advanced Care Planning

The purpose of this research study is to develop and test a new communication training to help caregivers communicate more effectively with their loved ones and healthcare professionals about advanced care planning.

Inclusion Criteria:

Part 1:

Informal caregivers:

• Current self-reported informal cancer caregivers (IC) to a patient with a primary malignant brain tumor as per clinician judgment or as per EMR
• English fluency: Self-report by participant identifying English as the preferred language for healthcare, and self-reported degree of fluency as speaking English "Very well."
• age ≥ 18
• has access to a computer or smartphone with a webcam and internet connection

Patients:

• English-speaking as per EMR
• Able to provide informed consent, a determination that will be made in assistance with the patient's medical team.

Part II:

Informal caregivers:

• Current self-reported IC to an MSK patient with a (1) primary malignant brain tumor or (2) leptomeningeal metastasis of a solid tumor, as per clinician judgment or as per EMR.
• English fluency: Self-report by identifying English as the preferred language for healthcare, and self-reported degree of fluency as speaking English "Very well."
• Age >18 as per self report
• Access to a computer or smartphone with a webcam and internet connection as per self report

Exclusion Criteria:

• None