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This is a multicenter prospective registry of IPF patients in South Korea. The Seoul National University Bundang Hospital is the coordination center for the Korean IPF Registry built by a collaboration of the Korean Interstitial Lung Diseases (ILD) Study Group.
Korean ILD Study Group includes investigators of 30 hospitals. Demographic, pulmonary function, laboratory data, chest CT findings and hospital course of IPF patients are collected.
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| Measure | Description | Time Frame |
|---|---|---|
| survival of IPF | lung function change (FVC, DLCO) | through study completion, an average of 1 year |
| Measure | Description | Time Frame |
|---|---|---|
| survival | death rate | through study completion, an average of 1 year |
| acute exacerbation | rate of acute exacerbation | through study completion, an average of 1 year |
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Inclusion Criteria:
Exclusion Criteria:
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Adult patients with IPF
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Jong Sun Park, MD | Contact | jspark.im@gmail.com |
| Name | Affiliation | Role |
|---|---|---|
| Man Pyo Chung, MD | Samsung Medical Center | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Seoul National University Bundang Hospital | Recruiting | Seongnam-si | 13620 | South Korea |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 33270528 | Derived | Moon SW, Kim SY, Chung MP, Yoo H, Jeong SH, Kim DS, Song JW, Lee HL, Choi SM, Kim YW, Kim YH, Park CS, Park SW, Park JS, Jegal Y, Lee J, Uh ST, Kim TH, Lee JH, Kim YH, Shin B, Lee HK, Yang SH, Lee H, Kim SH, Lee EJ, Choi HS, Shin H, Park YB, Shin JW, Park MS. Longitudinal Changes in Clinical Features, Management, and Outcomes of Idiopathic Pulmonary Fibrosis. A Nationwide Cohort Study. Ann Am Thorac Soc. 2021 May;18(5):780-787. doi: 10.1513/AnnalsATS.202005-451OC. |
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| ID | Term |
|---|---|
| D054990 | Idiopathic Pulmonary Fibrosis |
| ID | Term |
|---|---|
| D011658 | Pulmonary Fibrosis |
| D017563 | Lung Diseases, Interstitial |
| D008171 | Lung Diseases |
| D012140 | Respiratory Tract Diseases |
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serum, protein, DNA
| incidence of comorbidity | incidence of lung cancer | through study completion, an average of 1 year |