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| Name | Class |
|---|---|
| Providence Health & Services | OTHER |
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The anticipated birth of an extremely low gestational age infant presents many complex and ethically challenging questions, including whether to initiate resuscitation or comfort care after delivery. Failure to identify and align decision-making to parents' values during periviabilty counseling may result in greater opportunity for decisional regret. The goal of the proposed research is to assess decisional regret in mothers of extremely premature births and to compare decisional regret in mothers who chose resuscitation at time of delivery to those who chose comfort care. Approximately 1000 mothers of infants born extremely premature at 2 perinatal centers in the US will be surveyed.
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| Measure | Description | Time Frame |
|---|---|---|
| Decisional regret | To assess decisional regret in mothers of extremely premature liveborn infants. | Within the last 14 years |
| Comparison of decisional regret | Comparison of decisional regret in mothers who chose resuscitation versus mothers who chose comfort care at the time of delivery. | Within the last 14 years |
| Measure | Description | Time Frame |
|---|---|---|
| Define characteristics associated with decisional regret | Identify characteristics, and specifically potentially modifiable characteristics, that are associated with decisional regret in our population of mothers. | Within the last 14 years |
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Inclusion Criteria:
Exclusion Criteria:
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Gender eligibility for this study will be determined by women who had the ability to become pregnant and give birth at one of 2 perinatal centers.
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The study population will consist of mothers who delivered infants between 22 and 25 completed weeks gestation during the study timeframe at one of two US perinatal centers.
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| Name | Affiliation | Role |
|---|---|---|
| Laura Belden, DO | Christiana Care Health Services, Inc. | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Christiana Care Health Services, Inc. | Newark | Delaware | 19718 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 39164062 | Derived | Belden L, Kaempf J, Mackley A, Kernan-Schloss F, Chen C, Sturtz W, Tomlinson MW, Guillen U. Evaluating decision regret after extremely preterm birth. Arch Dis Child Fetal Neonatal Ed. 2025 Feb 21;110(2):191-199. doi: 10.1136/archdischild-2024-327287. |
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| ID | Term |
|---|---|
| D047928 | Premature Birth |
| ID | Term |
|---|---|
| D007752 | Obstetric Labor, Premature |
| D007744 | Obstetric Labor Complications |
| D011248 | Pregnancy Complications |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
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| D000091642 | Urogenital Diseases |