Pulmonary Hypertension Association Registry
Pulmonary Hypertension Association Registry
The PHA Registry (PHAR) is a national study about people who have pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). PHAR collects information from people with PAH and CTEPH who are cared for in participating PHA-accredited Pulmonary Hypertension Care Centers throughout the U.S.
PHAR will determine how people with PAH and CTEPH are evaluated, tested, and treated, and will observe how well these participants do. The goal is to see if people with PH are treated according to recommended guidelines, and to see if there are certain factors that can lead to better or worse outcomes.
PHAR will include information about people with PAH and CTEPH in the U.S. who are seen at participating PHA-accredited PH Care Centers. PHAR contains data about patient care and outcomes. Specifically, data in the PHAR includes information on diagnosis; clinical status; socioeconomic status; diagnosis test results; body size; treatment information; interest in participating in clinical trials; family health and social history; and information about smoking, alcohol, or drug use. Participants are followed over time, and provide updates such as changes in therapy, how often participants need to go to the hospital, and survival. Such information may help healthcare providers provide better care.
Inclusion Criteria:
Exclusion Criteria:
PHAR@PHAssociation.org301-565-3004 ext. 759
burger.charles@mayo.edu904-953-2000 ext. 904-953-2000
Phoenix, Arizona 85012, United States
602-274-7195
Santa Barbara, California 93105, United States
New York, New York 10032, United States
nkjaha@ucdavis.edu916-734-1554
clpbaker@ucdavis.edu916-734-1554
teresa.demarco@ucsf.edu415-353-9088
amanda.schnellheringer@ucsf.edu415-353-9088
jeff.fineman@ucsf.edu415-476-3679
jasmine.becerra@ucsf.edu415-476-2649
jsager@sblung.com805-898-8840
ctorchia@sbch.org805-569-8993
dstandley@stanford.edu650-736-3678
pdelrosa@stanford.edu650-721-2408
dunbar.ivy@childrenscolorado.org720-777-6820
kathleen.miller-reed@childrenscolorado.org720-777-6427
david.badesch@cuanschutz.edu303-880-8808
kelly.hannon@cuanschutz.edu720-848-6518
r.foley@uchc.edu860-679-3585
burger.charles@mayo.edu904-953-4374
gundian.kristine@mayo.edu
paul.boyce@northside.com404-257-0006
tamara.wakhisi@northside.com404-236-8322
mduncan3@iuhealth.org317-962-9700
mastin@iuhealth.org317-962-2072
319-356-7102
319-356-7102
twillia1@kumc.edu913-588-6046
502-587-8000
502-587-8000
smandras@ochsner.org504-842-4721
angela.penning@ochsner.org504-703-5612
mlammi@lsuhsc.edu504-412-1517
plauto@lsuhsc.edu504-568-3451
gramani@som.umaryland.edu410-328-7260
lpoliako@som.umaryland.edu
smathai4@jhmi.edu410-614-6311
jshambe2@jhmi.edu410-614-6311
rawdish1@hfhs.org313-916-3757
srenaud9@hfhs.org313-916-3757
tthenapp@umn.edu612-365-5000
gpeichel@umn.edu
frantz.robert@mayo.edu507-538-3270
507-538-7297
chakinalam@wustl.edu314-454-8917
elovato@wustl.edu314-454-8717
horneve@med.cornell.edu646-962-5555
gadioma@nyp.org646-962-5555
esb14@cumc.columbia.edu212-305-4436
dm2069@cumc.columbia.edu212-305-4436
jim_white@urmc.rochester.edu585-486-0869
allison_light@urmc.rochester.edu585-486-0869
hjford@med.unc.edu919-966-2531
laura_nowicki@med.unc.edu919-843-7871
kishan.parikh@duke.edu
noely.martinez-overby@duke.edu
russel.hirsch@cchmc.org513-636-7072
alyssa.rhode@cchmc.org513-636-7072
elwingj@ucmail.uc.edu513-475-8523
gilkisjr@ucmail.uc.edu513-475-8523
jerobinson@orclinic.com503-297-3778
spersons@orclinic.com503-963-3093
kawut@upenn.edu800-789-7366
randi.goodman@pennmedicine.upenn.edu215-294-9758
amresh.raina@ahn.org412-359-3551
kimberly.curry@ahn.org412-359-4608
simonma@upmc.edu412-802-3131
sunga3@upmc.edu412-648-6024
corey_ventetuolo@brown.edu401-444-0008
apalmisciano@lifespan.org401-444-4961
drravallung@gmail.com864-225-5667
kelly.dickson@anmedhealth.org864-512-6625
865-588-8831
rbarnes@statcaremed.net
eric.austin@vumc.org615-875-6901
karen.e.chaffin@vumc.org615-936-2233
anna.r.hemnes@vumc.org615-322-3412
sonja.bartolome@utsouthwestern.edu214-645-5505
balaji.kolasani@utsouthwestern.edu214-645-1295
npvarghe@texaschildrens.com832-822-3300
ecbockov@texaschildrens.com832-822-1879
sahil.bakshi@bswhealth.org469-814-3897
lucy.knight@bswhealth.org469-814-4727
john.ryan@hsc.utah.edu801-585-7676
brittany.penn@hsc.utah.edu801-585-2469
sm8sd@hscmail.mcc.virginia.edu434-982-1058
AEH4M@hscmail.mcc.virginia.edu434-982-1058
oksana.shlobin@inova.org703-776-2986
edwinia.battle@inova.org703-776-3067
757-388-2831
mmbulliv@sentara.com757-388-4024
daniel.grinnan@vcuhealth.org800-828-9000
charnetta.robinson@vcuhealth.org804-828-9000
delphine.yung@seattlechildrens.org
anne.davis@seattlechildrens.org
learyp@uw.edu206-685-2484
gen7@medicine.washington.edu206-543-8334
jrr@medicine.wisc.edu608-263-7203
amy.chybowski@uwmf.wisc.edu608-263-6400
414-646-2438
michelle.cicona@aurora.org414-646-0424
kpresber@mcw.edu414-955-7032
akimber@mcw.edu414-955-7033