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| ID | Type | Description | Link |
|---|---|---|---|
| 18-A1-00-007376 | Other Grant/Funding Number | NATIONAL INSTITUTE OF MENTAL HEALTH (NIM) |
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inventional part of the study is registered under NCT05195489
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| Name | Class |
|---|---|
| National Institute of Mental Health (NIMH) | NIH |
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This study proposes to adapt an evidence based peer parent navigator (PPN) intervention, called Parent Connectors, in which trained and supervised PPNs deliver weekly telephone-based support for six to nine months to parents or caregivers of all newly enrolled youth or young adults (Y/YA) in FEP services. This PPN model will be used to enhance the delivery of Coordinated Specialty Care (CSC) for Y/YA in New York's state program for FEP, called OnTrackNY (OTNY). This research project has potential to add value to the CSC model through the inclusion of a feasible, low burden intervention that may improve family participation in services and Y/YA outcomes. Using random assignment, this study will examine the feasibility and preliminary impact of an accelerator strategy-the inclusion of peer parent navigators or PPNs-in CSC teams.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Parent Connectors | Active Comparator | trained and supervised PPNs deliver weekly telephone-based support for six to nine months to parents or caregivers of all newlyenrolled youth or young adults (Y/YA) in FEP services |
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| Usual Care | Active Comparator | Coordinated Specialty Care (CSC) |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| PPN | Behavioral | Delivery of Coordinated Specialty Care (CSC) for Y/YA in New York's state program for FEP, called OnTrackNY (OTNY). |
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| Measure | Description | Time Frame |
|---|---|---|
| Family Empowerment Scale (FES) | A 34 item self reported instrument designed to measure empowerment status. The scale measures levels of empowerment, such as family, service system and community, and is rated on a likert scale, scale, ranging from1 (not true at all) to 5 (very true). The FES produces scores for three subscales based on level of empowerment:Family (12 items), Service system (12 items), and Community/ Political (10 items). | 9 Months |
| Patient Activation Measure (PAM) | 100-point quantifiable scale determining patient engagement in healthcare | 9 Months |
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Inclusion Criteria:
Exclusion Criteria:
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| CSC Usual Care | Behavioral | standard of care provided to youth following first episode of psychosis |
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