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Sickle cell disease (SCD) necessitates a paediatric treatment plan that considers the influence of psychological, family and intercultural factors. At the Louis-Mourier Hospital (APHP) in Colombes, France, a paediatric-psychological partnership where a clinical psychologist accompanies the paediatrician at programmed consultations was introduced.
The psychological repercussions of SCD were assessed among children and their parents treated in Colombes and in two other paediatric units without a paediatric-psychological partnership.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients in centre 1: Louis-Mourier Hospital | All SCD follow-up consultations were conducted jointly by a paediatrician and a clinical psychologist. |
| |
| Patients in centre 2: Evry hospital | All SCD follow-up consultations were conducted by a paediatrician alone. The unit had close links with the local psycho-medical paediatric care centre when specialized referrals were necessary. |
| |
| Patients in centre 3: Clamart hospital | All SCD follow-up consultations were conducted by a paediatrician alone. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Assessment of psychological repercussions of SCD | Other | Quantitative relevant data culled from medical files and qualitative analysis based on data gathered from child and parent interviews, were collected in the three hospitals. |
| Measure | Description | Time Frame |
|---|---|---|
| Rey-Osterrieth complex figure test scores (ROCF recall scores) | The Rey-Osterrieth complex figure test (ROCF) is a neuropsychological assessment in which patients are asked to reproduce a complicated line drawing, first by copying it freehand (recognition), and then drawing from memory (recall). Scoring of drawings is based on the widely used 36-point scoring system (0 being the worst score and 36 the best). | 1 day |
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Inclusion Criteria:
Exclusion Criteria:
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Children suffering from SCD and their parents, consulting in one of the 3 hospitals.
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| ID | Term |
|---|---|
| D000755 | Anemia, Sickle Cell |
| D000092862 | Psychological Well-Being |
| ID | Term |
|---|---|
| D000745 | Anemia, Hemolytic, Congenital |
| D000743 | Anemia, Hemolytic |
| D000740 | Anemia |
| D006402 | Hematologic Diseases |
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| D006425 |
| Hemic and Lymphatic Diseases |
| D006453 | Hemoglobinopathies |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D010549 | Personal Satisfaction |
| D001519 | Behavior |