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| ID | Type | Description | Link |
|---|---|---|---|
| WFBCCC 04219 | Other Identifier | Wake Forest Baptist Comprehensive Cancer Center | |
| P30CA012197 | U.S. NIH Grant/Contract | View source | |
| NCI-2019-01751 | Other Identifier | National Cancer Institute |
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| Name | Class |
|---|---|
| National Cancer Institute (NCI) | NIH |
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The purpose of this proposed study is to enhance the investigators understanding of the comprehensive psychosocial and medical needs of rural cancer patients and survivors along the cancer continuum, ultimately allowing us to address these gaps by identifying areas of support that can be bolstered by a population health navigator focused on rural populations.
Primary objectives
To enhance understanding of the comprehensive psychosocial and medical needs of cancer survivors and caregivers in rural northwest North Carolina, focusing on their health needs, psychosocial concerns, perceived needs related to cancer and survivorship care, access/barriers to care, and knowledge/perceptions of clinical research using focus groups and semi-structured interviews. This aim is hypothesis-generating.
To document rural cancer patient/survivors' reports of: a) health behaviors; b) psychosocial needs; c) current health-related information and supportive care needs; d) barriers to care; e) symptoms and health-related quality of life using a quantitative survey
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Semi-Structured Interview | Participants will choose to participant in an individual in-depth interview to be conducted by investigators to gain information about the participant's background, cancer status and treatment. | ||
| Focus Groups | Participants may choose to participate in one of three focus groups of no more than 10 participants in each group to to gain information about the participant's background, cancer status and treatment. |
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| Measure | Description | Time Frame |
|---|---|---|
| Improving Cancer-Related Experiences Through Interviews or Focus Group Settings | Through focus groups or interviews information will be collected on participants' experience receiving cancer-related care and to ask for specific suggestions and ways to improve care and cancer-related resources for adults living in a rural area. | 90 minutes |
| Measurement of Quality of Life | The PROMIS Global 10 survey will be used to document rural cancer patient/survivors' reports of: a) health behaviors; b) psychosocial needs; c) current health-related information and supportive care needs; d) barriers to care; e) symptoms and health-related quality of life using a quantitative survey. Survey scoring consists of 5=Never, 4=Rarely, 3=Sometimes, 2=Often and 1=Always. | 90 minutes |
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Inclusion Criteria:
Providers:
Exclusion Criteria:
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The target population for this study is adult men and women of all races and ethnicities who have received a diagnosis of cancer and are residing in a rural area of Northwest North Carolina.
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| Name | Affiliation | Role |
|---|---|---|
| Kathryn Weaver, MPH, PhD | Wake Forest University Health Sciences | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Wake Forest Baptist Comprehensive Cancer Center | Winston-Salem | North Carolina | 27157 | United States |
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
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