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| Name | Class |
|---|---|
| FH Campus Wien, University of Applied Sciences | OTHER |
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Background, current situation, and motivation
According to current estimates, 100,000 people in Austria suffer from various types of dementia. According to forecasts, this number of people will rise to approximately 230,000 by 2050 due to the demographic development and the increase of the prevalence rate. Data from the service statistics show that 85% of dementia patients still live in the community in their homes and informal caregivers, such as relatives, support them. In total, more than 300,000 people care for their relatives in Austria in addition to professional support. However, not only the person affected from dementia suffers from the disease, but also, and often at a higher rate, the informal caregivers. Vice versa, the quality of life of those suffering from dementia is significantly influenced by the caregivers' competences and their strategies for resilience.
Study aim and hypothesis
The aim of this study is to evaluate the usability, acceptance, and effect of an app consisting of three modules that provide multidimensional support for informal caregivers of a person with dementia.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| DEA-App | Experimental | The intervention (DEA) group will receive the newly developed app. |
|
| Standard Information group | Other | The control group will receive a leaflet on some general principles for promoting health and well-being in older adults with dementia. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| DEA-App | Other | The intervention (DEA) group will receive the newly developed app. DEA will consist of three simultaneous modules that provide multidimensional support for informal caregivers aiming to reduce the caregiver burden:
If two or more persons are caring for one person with dementia, the communication module provides a networking possibility. |
| Measure | Description | Time Frame |
|---|---|---|
| Burden Scale for Family Caregivers | The Burden Scale for Family Caregivers are rated on a scale from 0 (strongly disagree) to 3 (strongly agree). The score ranges from 0 to 84 points. Higher scores indicate greater caregiver burden | 3 month after baseline |
| Measure | Description | Time Frame |
|---|---|---|
| 12-item Short-Form Health Survey | The SF-12 is a shortened version of the 36-item Short Form Health Survey (SF-36). It is developed as an applicable instrument for measuring health-related quality of life. | 3 month after baseline |
| Adult carers quality of life questionnaire |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Tanja A Stamm, PhD | Medical University of Vienna | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Medical University of Vienna | Vienna | 1090 | Austria | |||
| University of Applied Sciences FH Campus Wien |
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| ID | Term |
|---|---|
| D003704 | Dementia |
| ID | Term |
|---|---|
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
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| Standard Information group | Other | The control group will receive a leaflet on some general principles for promoting health and well-being in older adults with dementia. |
|
The Adult Carer Quality of Life Questionnaire is a simple instrument for use with adult carers. It measures quality of life in eight domains:
|
| 3 month after baseline |
| Vienna |
| 1100 |
| Austria |
| D001523 | Mental Disorders |