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| Name | Class |
|---|---|
| Gustave Roussy, Cancer Campus, Grand Paris | OTHER |
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The ultimate aim of this registry is to collect precise information concerning the children coming to oncology units working with the French African Oncology Group. This data will help to plan and provide correct pediatric oncology treatment and care for this population.
Collecting the data will give much needed information on numbers, stage, treatment and outcome. The register will give data for local and national health authorities in planning pediatric cancer programs.
This register is a registration of all children entering hospital based pediatric oncology units, working in selected hospitals in French speaking Africa. The data collected includes: demographic and socioeconomic status as well as clinical status and outcome.
The register also collects information on vital status, treatment abandonment and loss to follow-up.
Data, collected locally is entered on line using the Research Electronic Data Capture (REDCap) program. Data are stored under the responsibility of the IT department at Gustave ROUSSY in Paris- Villejuif.
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| Measure | Description | Time Frame |
|---|---|---|
| Number of children with a suspicion of any type of cancer in a given unit | Number of children with details of :
| in any 12 month period |
| VITAL STATUS: | Dead or alive
| in any 12 month period |
| Illness status |
| in any 12 month period |
| Treatment Status |
| in any 12 month period |
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Inclusion Criteria:
Exclusion Criteria:
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All childre with any pediatric cancer types, coming into any one of the participating units in a 12 month period.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Brenda MALLON, MSC | Contact | + 33142115411 | brenda.mallon@gustaveroussy.fr | |
| Catherine PATTE, DR | Contact | + 33142116560 | catherine.patte@gustaveroussy.fr |
| Name | Affiliation | Role |
|---|---|---|
| Brenda Mallon, MSc | French Africa Pediatric Oncology Group | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hopital Yalgado Ouedraogo | Recruiting | Ouagadougou | 03 BP 7022 | Burkina Faso |
Units have acess to their own data and can use it for reporting.
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| Centre Hospitalier Universitaire Pédiatrique Charles De Gaulle | Recruiting | Ouagadougou | Burkina Faso |
|
| Centre Mère et Enfant CME-FCB (Fondation Chantal Biya) | Recruiting | Yaoundé | Cameroon |
|
| CHU de Treichville à ABIDJAN | Recruiting | Abidjan | Abidjan Autonomous District | Côte d’Ivoire |
|
| Cliniques Universitaires de Kinshasa | Recruiting | Kinshasa | Kinshasa City | BP 12 KIN XI | Democratic Republic of the Congo |
|
| Cliniques Universitaires de Lubumbashi (CUL) | Recruiting | Lubumbashi | BP 1825 | Democratic Republic of the Congo |
|
| GFAOP | Recruiting | Villejuif | PARIS | 00094 | France |
|
| l'Institut de Cancérologie de Libreville | Recruiting | Libreville | Gabon |
|
| HJRA, Hôpital universitaire Joseph Ravoahangy Andrianavalona | Recruiting | Antananarivo | Ampefiloha | BP 4150 | Madagascar |
|
| CHU Gabriel Touré (HGT) | Recruiting | Bamako | Mali |
|
| Centre National d'Oncologie (CNO) | Recruiting | Nouakchott | Mauritania |
|
| CNLC, Centre National de Lutte contre le Cancer | Recruiting | Niamey | Niger |
|
| Hôpital Aristide Le Dantec, Avenue Pasteur, BP 3001 | Recruiting | Dakar | Dakar | Senegal |
|
| CHU Sylvanus Olympio | Recruiting | Lomé | BP 57 | Togo |
|
| ID | Term |
|---|---|
| D009369 | Neoplasms |
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