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| ID | Type | Description | Link |
|---|---|---|---|
| IRB00111131 | Other Identifier | JHM IRB | |
| 2016-03p | Other Identifier | Palliative Care Research Consortium |
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| Name | Class |
|---|---|
| Duke University | OTHER |
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The purpose of this pilot study is to explore the role of family function on decision-making for bone marrow donors who donated for their parent, and to assess the unique supportive care needs of these participants. Semi-structured interviews were conducted with participants to identify overarching themes of the donation experience.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| bone marrow/blood stem cell donors | Participants underwent a one time semi-structured telephone interview to understand the perspectives of bone marrow/stem cell donors experience, including how family dynamics impacted participants' decision to donate and identifying unique supportive care needs of bone marrow/stem cell donors. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Semi-structured Interview | Other |
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| Measure | Description | Time Frame |
|---|---|---|
| Themes influencing donors' decision-making as assessed by words used during interview responses | Words/terms are extracted from interviewer responses and associated to key themes that influence participant's decision-making process. A codebook is used to reference these words/terms | Day 1 |
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Inclusion Criteria:
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Participants included adolescents, young adults, or adults who had donated bone marrow or peripheral blood stem cells for their parent in the past 1 - 6 months.
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| Name | Affiliation | Role |
|---|---|---|
| Nina D Wagner-Johnston, MD | Johns Hopkins University | Principal Investigator |
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