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| Name | Class |
|---|---|
| Waid City Hospital, Zurich | OTHER |
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Developed by Harvey M. Chochinov in 2005, Dignity Therapy (DT) invites individuals with life-limiting illnesses to reflect on matters of importance to them and compiles them in a narrative document for the patient to share. DT has shown to improve quality of life and a sense of dignity, as well as supporting relatives in the process of grievance. Featuring a gradual loss of memories of the past, decline of cognitive functions and awareness of self, dementia can be regarded as a life-limiting or life-changing illness, which is often accompanied by significant psychological stress. DT may help patients and their relatives reduce this stress. Yet, no studies have been conducted to determine the benefits of DT in patients with early stage dementia (ESD). This study investigates the feasibility and acceptance of DT by patients with (very) mild dementia (CDR: 0.5 - 1.5) and their relatives, as well as their overall satisfaction. This study further seeks to determine the effects of DT on sense of dignity, quality of life, dyadic coping, and levels of anxiety and depression in a randomized controlled design.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Interventiongroup | Experimental | Dignity Therapy. Patients receive dignity-therapy-Intervention after randomization |
|
| Waitinggroup | No Intervention | Patients receive dignity-therapy-Intervention after a waiting time of 3 months post randomization |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Dignity Therapy | Behavioral | Dignity Therapy (DT) invites individuals with life-limiting illnesses to reflect on matters of importance to them and compiles them in a narrative document for the patient to share. |
| Measure | Description | Time Frame |
|---|---|---|
| Participation and refusal rate of Dignity Therapy among Patients with an early stage dementia | Acceptance based on the participation and refusal rate and dropout rate. | 10 days post randomization |
| Overall satisfaction of patients and their relatives | Overall satisfaction is indicated by answers to the Dignity Therapy Evaluation Questionnaire (DTEQ), which includes 10 items. | 10 days post randomization |
| Measure | Description | Time Frame |
|---|---|---|
| Psychological distress | as measured by the Distress Thermometer (DT), which measures psychological stress using a numerical rating scale from 0 (no) to 10 (max. stress) Anxiety and Depression, as measured by the Hospital Anxiety and Depression Scale (HADS). | 10 days post randomization |
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Inclusion Criteria:
Exclusion Criteria:
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Zurixh | Zurich | 8091 | Switzerland |
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| ID | Term |
|---|---|
| D003704 | Dementia |
| D008224 | Lymphoma, Follicular |
| D003866 | Depressive Disorder |
| ID | Term |
|---|---|
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
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| ID | Term |
|---|---|
| D000096225 | Dignity Therapy |
| ID | Term |
|---|---|
| D011613 | Psychotherapy |
| D004191 | Behavioral Disciplines and Activities |
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| D001523 | Mental Disorders |
| D008228 | Lymphoma, Non-Hodgkin |
| D008223 | Lymphoma |
| D009370 | Neoplasms by Histologic Type |
| D009369 | Neoplasms |
| D008232 | Lymphoproliferative Disorders |
| D008206 | Lymphatic Diseases |
| D006425 | Hemic and Lymphatic Diseases |
| D007160 | Immunoproliferative Disorders |
| D007154 | Immune System Diseases |
| D019964 | Mood Disorders |