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People with severe and persistent mental disorders (or SMI, Severe Mental Illness) have a life expectancy which is 20 years less than the general population, mainly due to excess mortality related to cardiovascular disease. Moreover, despite an overall increase in life expectancy, the gap is widening between people with long-term psychological disorders and the general population.
This early excess mortality is explained by disparities between people with SMI and the general population not only in access to and use of health services but also in the quality and type of care provided. There is also an over-representation of risk factors and cardiovascular pathologies regardless of the mental disorder, despite the current recommendations for best practices.
The World Health Organization has defined the fight against somatic comorbidities as one of the axes of the European Mental Health Plan and one of the reference themes of the World Health Organization Mental Health Evidence and Research Programme (EPSM-Lille-Métropole). The Groupement de Coopération Sanitaire pour la recherche et la formation en santé mentale, which brings together 17 hospitals in France and relays the actions of the World Health Organization's Collaborating Centre, has decided to make it into a national research project.
Moreover, it is recognized that "medical" management of a disease is all the more effective when the patient is involved. However, the empowerment of people with long-term psychological disorders has never been put at the centre of a strategy to reduce cardiovascular risk.
In this context, we hypothesize that one of the keys to reducing cardiovascular risk would be to take into account the experience and representations of this risk by all stakeholders (people with long-term psychological disorders, their carers, primary health professionals and psychiatric professionals).
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Users | Person with a long-term mental disorder |
| |
| Caregivers | Adult helping a person with a long-term psychological disorder |
| |
| Primary care professionals | Primary care professional in practice following at least one person with a long-term mental disorder |
| |
| Psychiatric professionals | Psychiatric specialist working in a hospital or in private practice |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Questionnaires (Phase 3) | Other |
|
|
| Measure | Description | Time Frame |
|---|---|---|
| Focus group interview completion | Through study completion, an average of 14 months |
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Inclusion Criteria:
For all groups:
For the "Users" group:
- Person with a long-term psychological disorder: Long-term illness (ALD 23), followed by outpatient or full hospitalization
For the "Caregivers" group:
- Adult helping a person with a long-term psychological disorder with a Long-Term Disability (ALD 23) and who has given his or her consent to be contacted for the study,
For the "Primary Care Professionals" group:
- Primary care professional in practice following at least one person with a long-term psychological disorder with a Long-Term Disability (ALD 23),
For the "Psychiatric Professionals" group - Professional currently in practice who is part of a psychiatry team or in private practice
Exclusion Criteria:
1. For all groups:
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Patients followed in ambulatory or full hospitalization (depending study phase)
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Chu Dijon Bourogne | Dijon | 21000 | France |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 31889999 | Derived | Baleige A, Besnard JF, Meunier-Beillard N, Demassiet V, Monnier A, Ouezini A, Lambert O, Charrel C, Mazas O, Oberlin J, Roelandt JL, Denis F. A collaboration between service users and professionals for the development and evaluation of a new program for cardiovascular risk management in persons with a diagnosis of severe mental illness: French multicenter qualitative and feasibility studies. Int J Ment Health Syst. 2019 Dec 27;13:74. doi: 10.1186/s13033-019-0331-6. eCollection 2019. |
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| Focus groups (Phase 2) | Other | Focus group interviews conducted by two health sociologists in 4 distinct categories: caregivers, patients, primary health care professionals and psychiatric professionals. |
|
| semi-structured interviews (Phase 1) | Other | Conduct of exploratory semi-directive interviews with users, caregivers, primary health care professionals and psychiatric professionals by a health sociologist |
|
| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| D017326 | Clinical Trials, Phase III as Topic |
| D017144 | Focus Groups |
| D017322 | Clinical Trials, Phase II as Topic |
| D017321 | Clinical Trials, Phase I as Topic |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |
| D002986 | Clinical Trials as Topic |
| D000068456 | Clinical Studies as Topic |
| D016020 | Epidemiologic Study Characteristics |
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