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Registry of patients with Primary Cutaneous Lymphoma seen at participating centers in Spain. The registry will identify patients with this disease and includes information about stage, diagnostic and therapeutic interventions and willingness to participate in further studies.
Registry of patients with Primary Cutaneous Lymphoma seen at participating centers in Spain. The registry will identify patients with this disease and includes information about stage, diagnostic and therapeutic interventions and willingness to participate in further studies.
Data is entered in the registry in each of the participating cutaneous lymphoma clinics. These data are updated at least yearly. Participants receive specific training before starting, and there is an online continuous monitoring system.
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Registry of patients (exposure is Cutaneous Lymphoma) | Other |
| Measure | Description | Time Frame |
|---|---|---|
| Maximum TNM stage | Proportion | Through study completion, an average every 1 year |
| Therapeutic groups used | Including drugs, phototherapy, radiotherapy and procedures (blood marrow transplant) | Through study completion, an average every 1 year |
| Mortality | Rate | Through study completion, an average every 1 year |
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Inclusion Criteria:
Exclusion Criteria:
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Study population should be an accurate representation of patients with primary cutaneous lymphoma in Spain
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Ignacio Garcia-Doval, MD, PhD, MScEpid | Contact | +34 91 544 62 84 | investigacion@AEDV.ES |
| Name | Affiliation | Role |
|---|---|---|
| Pablo Ortiz, MD, PhD | Hospital 12 de Octubre | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hospital Clinic | Recruiting | Barcelona | Spain |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 29680323 | Background | Penate Y, Servitje O, Machan S, Fernandez-de-Misa R, Estrach MT, Acebo E, Mitxelena J, Ramon MD, Florez A, Blanes M, Morillo M, Medina S, Bassas J, Zayas A, Espinosa P, Perez A, Gonzalez-Romero N, Dominguez JD, Muniesa C, Lopez Robles J, Combalia A, Yanguas I, Suh H, Polo-Rodriguez I, Bielsa I, Mateu A, Ferrer B, Descalzo MA, Garcia-Doval I, Ortiz-Romero PL. The First Year of the AEVD Primary Cutaneous Lymphoma Registry. Actas Dermosifiliogr (Engl Ed). 2018 Sep;109(7):610-616. doi: 10.1016/j.ad.2018.03.006. Epub 2018 Apr 19. English, Spanish. |
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| Hospital Universitario Basurto | Recruiting | Bilbao | Spain |
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| Hospital General de Ciudad Real | Recruiting | Ciudad Real | Spain |
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| hospital Universitari de Bellvitge | Recruiting | L'Hospitalet de Llobregat | Spain |
|
| C.H.U. Insular-Materno Infantil | Recruiting | Las Palmas de Gran Canaria | Spain |
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| H.U. Fundación Jiménez Díaz | Recruiting | Madrid | Spain |
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| Hospital 12 de Octubre | Recruiting | Madrid | Spain |
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| Hospital Universitario Príncipe de Asturias | Recruiting | Madrid | Spain |
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| Complejo Hospitalario de Navarra | Recruiting | Pamplona | Spain |
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| CHOP-Hospital de Montecelo | Recruiting | Pontevedra | Spain |
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| H.U. Nuestra Señora de la Candelaria | Recruiting | Santa Cruz de Tenerife | Spain |
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| H.U. Virgen del Rocío | Recruiting | Seville | Spain |
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| Hospital General Universitario de Valencia | Recruiting | Valencia | Spain |
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| Hospital Valencia-Clínico Malva-Rosa | Recruiting | Valencia | Spain |
|
| ID | Term |
|---|---|
| D016410 | Lymphoma, T-Cell, Cutaneous |
| D018442 | Lymphoma, B-Cell, Marginal Zone |
| D016403 | Lymphoma, Large B-Cell, Diffuse |
| D012751 | Sezary Syndrome |
| D054391 | Lymphoma, Extranodal NK-T-Cell |
| D016393 | Lymphoma, B-Cell |
| ID | Term |
|---|---|
| D016399 | Lymphoma, T-Cell |
| D008228 | Lymphoma, Non-Hodgkin |
| D008223 | Lymphoma |
| D009370 | Neoplasms by Histologic Type |
| D009369 | Neoplasms |
| D008232 | Lymphoproliferative Disorders |
| D008206 | Lymphatic Diseases |
| D006425 | Hemic and Lymphatic Diseases |
| D007160 | Immunoproliferative Disorders |
| D007154 | Immune System Diseases |
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